Bad Sweating

I only ever had bad sweating when I was on the big 3 for MAC. It was awful as I was never a sweaty person

Hi Namd,

I am on the Big three as we speak. First infusions for 3 months. Along the way of that they also started me on the 3 drugs. I get tested next week to see how my Mac is. Then 12 to 15 more months of the 3 meds.

I was told I may sweat while on the pills but this much?
I'm not a sweaty person at all either.

Tanks for your reply. I just wanted to relate to someone about the sweating? It actually takes alot out of you when you wake up. It brings me down sometimes.
Sorry I'm rambling.

Where are you at in your recovery?

I ramble all the time about NTM!! I am probably going to restart the big 3 on Thursday unless they can offer me an alternative. All I know is I am not the same person I was 3 years ago. This NTM and bronchiectasis has caused so much change in my life. I am sure you feel the same. We have to battle on. I started to use a deodorant called Sweatguard and it really helped. It is not cheap but it lasts for ages. They have a bodywash and a soap too. Worth a try! Good luck

Wow Namd,

Yes, the last three years have changed my life very much.

How do you think it changed you?

Thanks for the info on the deodorant. I have used many. I've written it down. I like the idea of the soup.

Right now I am using Degree Advanced 73H body heat activated in a spray can. The roll ons did not help me. I smelled horrible yucky.

I could have given up many times through this but for me I am trying to hand more over to God to help me have more strength as I haven't had much of that myself.

Tnx Kimba78

Hi again,
Losing weight as an already slim person has been awful my once full face looks about 10 years older. My eyes are not as bright. I know this sounds vain. I always get my hair done and wear make up everyday. It makes me feel better in myself. I have not had the energy to socialise and even if I plan something in advance I might feel awful on the day so end up cancelling. My friends and family have been very supportive. I often think 'why me?' I have always been very energetic and healthy so all this has caused me to slow down and I am only 58. I took my mum on holiday twenty years ago for her 70th birthday and she was amazing. I don't think I could fly to New York and shop until you drop. I went for my 50th little did I know that the chances of doing that again are pretty slim.
I go to bed early especially after a work day. The constant coughing and throat clearing is draining. I have put some weight back on but the thoughts of not being able to eat much again if I restart the big 3 is getting me down. Would love to know if others feel like this. We have to keep going. Hope you can get hold of the deodorant!

Hi Namd,
Sorry I haven't written sooner. I'm have just having the blues lately.

I can relate to your weight. I was at 118 I dropped down to 102. I have gained a few pounds back but I feel my body looks like crap not being able to do much with my muscles in the last three yrs. along with my face as you stated has aged with more wrinkles over the last 3 yrs.
I like to look good to but for so long there has been very little or no cover up, no blush, no make up for me either. I didn't care.

Boy can I relate to ending up canceling with friends and family. I'm glad you have support from your family. I haven't been that lucky. My family has for years not come around me as if they are going to catch it. Yes they got my I.D docs notes. Did you have that problem at all?

I have thought why me too? Some docs and nurses were like how did you get this this?
I wish I new. How am I supose to not get it again when I don't know I got it from?

I have a very high metabolism. I too use to have soo much energy. It bums me because it's just been so long. Do you ever wonder sometimes, will I ever be energetic again?

Travel gees I hear what you are saying. I can't even hang when I want with people let alone have energy to travel.

I go to bed early to. I'm usally heading for the bed around 8:45 pm. I sweat bad almost ever night. I get woken up by it. So the next day I'm really drained from sweating and keep getting up to change to dry cloths.

I am really happy you and I are on the same page. You are the first person I have been able to relate to all these yrs. During a very difficult time in our lives. I wish there were more people talking about how they are handling MAC.

Are you from or live in England? I ask because a few words I recognized that you said. Taking mum on a holiday.
And that deodorant is not here.

Sorry so long Namd, it's just finally i have learned how someone else feels with MAC. It's comforting.

Tnx so much Kim78

Thank you for your reply. We need to keep each other going. I am Irish from Dublin but moved to London in 1989! I am still Irish!
I look back at photos from 4/5 years ago and it is depressing. People comment on how thin I look - this does not help. I was not put on treatment again last week they need to check for antibiotic resistance. I am not sure if I want to go on treatment again. If I have a good sleep I am fine but no 2 days are the same. The weather impacts how I feel too.
Pity about the deodorant.
When I go out walking I always think will I ever get back to my old self again - I think not. Anyway onwards and upwards. We need to battle on. It is ok to feel down and say that we don't feel good. Bright, sunny days are the best and eating chocolate gives me a boost. Look after yourself.