Who else has Autonomic Neuropathy?

What doctor test for those things? small fiber neuropathy

Neurologist made the diagnosis. No, his BS is not well-controlled and until he becomes convinced he MUST do that, I guess there’s nothing much more that can be done. (He’s on max meds from Endocrinologist.). BUT, he’s got something else too so next is a hematologist. In testing they found protein issues in his blood. Something called MGUS as well as Kappa Lambda Free Chain irregularities. Not a good sign, I know. I imagine a bone marrow test is next. I “think” what they may be looking for is a possible MM diagnosis.

@dipperlip1, I'm sorry to hear the neuropathy has gotten worse after 2 years. From what I've read B6 toxicity induced neuropathy can resolve in 6 months but it may depend on how long the B6 levels were high in your system. Here's some information on the topic.

"Neuropathy from massive exposures can cause long-term disability or death. Neurologic dysfunction improves following discontinuation of vitamin B supplementation and usually resolves within six months. Jan 10, 2022" --- Vitamin B6 Toxicity: https://www.ncbi.nlm.nih.gov/books/NBK554500/

The Foundation for Peripheral Neuropathy lists some alternative or complementary treatments for neuropathy -- https://www.foundationforpn.org/treatments/
Have you looked into any alternative or complementary treatments?

John, thank you so much for the information. I will check out the sites you gave me. Right now I am taking Alpha Lipoic Acid 500 mg. daily even tough I do not have diabetes. Been taken it for some time, so far not much change. I do watch what I eat. Lots of fruit, vegetables and whole grain. Try to stay away from sugar. Kind of difficult since I still have to cook for my husband and he is a pasta and potato man. Not much meat. I can deal with the neuropathy during the day but is bad a night. Bottom of feet and knees feel hot. I take 400 mg. of Gabapentin at bedtime and rub Aspercream with Lidocaine on my feet. It helps for a couple of hours. I would like to mention that I also suffer from Erythromelalgia, was diagnosed by Mayo's in 2006 and also Raynauds. I am seeing another Neurologist on June 6th just for a 2nd opinion. Thanks again for the info.

I have been diagnosed with Small Fiber Polyneuropathy after 12 years of issues. I also have autonomic dysfunction that affects my digestive, heart and bladder. I take pregabalin and duloxitine for the neuropathy, heart and blood pressure meds for the heart issue (tachnycardia) and probiotics for my digestive issues with Reglan if needed for nausau. I have found this to be a very long road with many dead ends until I was finaly diagnosed after having autonomic testing in Boston by Dr. Peter Novak. I was told while I was there that Dr. Novak travels the world to find answers and best practices for autonomic neuropathy issues so I am one of his patients now. I have also been tested for several autoimmunes and everything under the sun with no clear answers.

Hello@ Obackus, I would like to discuss with you privately on the way forward and the treatment plan that you are undergoing to tackle the autonomic dysfunction. I am currently having that challenge now and at of work and totally depressed. It is always sucidal. I want to get back to my feet again and manage everything one thing at a time. Kindly assist here or tell me any other means that we can communicate, please.

I live in Europe and I'm suffering SFN with neuropathic pain in both feet and hands and some autonomic stuff as night sweating, swollen blood vessel and some digestive issues, along with dried eyes and mouth.. Etc I've seeing a lot of specialists , many of whom suspect I have SFN but I have not still a diagnosis. Today at last I'm having a corneal confocal microscopy procedure. Does anyone know if this microscophe is enough to confirm this pathology?? How can I know it has an autoimmune origin?? What else can I do??I have also other autoimmune diseases such as hipotiroidism and gastritis... But they have discarded others..Im only taking lyrica and tryptizol and a lot of vitamines, but this thing is progressing. It started in my right leg 2 years ago, are there any more things to try on?? I'm getting bored.

I’m not sure what you’re asking about B6? Here’s from online, “While vitamin B1 acts as a site-directed antioxidant, vitamin B6 balances nerve metabolism, and vitamin B12 maintains myelin sheaths.” I read that an artificial B vitamin called NAC was scientifically proven to work better than B vitamins. I couldn’t find NAC by itself in Walmart but, I found a product called Nervine that contains NAC which I began taking. I read mixed reviews about Nervine, some it did nothing for; others it took a few weeks but their neuropathy subsided. After I finished a 30 day supply the nerve pain was pretty much gone so, I didn’t buy more. Then my doctor gave me a B-12 vitamin shot. I was also taking a lot of other vitamins and began consuming copious amounts of leafy green veggies in smoothies, eating more salads and veggies, quit caffiene, sugar, etc. By the time that I got into the rheumatologist for my RA, the neuropathy was already gone.

How long did you have your neuropathy?