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autonomic dysfunction
If I was previously diagnosed with POTS and orthostatic intolerance (based on the active stand test), which is now mostly under control with meds, but I still have the symptoms of POTS and OI (such as lightheadedness, dizziness, nausea, fatigue, headaches, exercise intolerance, difficulty with concentration, coldness in extremities, etc.), where does that leave me diagnostically?
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Hello @mama.aloha, You mentioned that the POTS and orthostatic intolerance is mostly under control with the meds but you still are having some of the symptoms. I think it's important to discuss your questions and concerns with your doctor if you haven't already done that. Here's some additional information I found on the Standing Up to POTS website that might be helpful:
-- Managing POTS Symptoms: https://www.standinguptopots.org/livingwithpots/pots-tricks
Have you discussed the ongoing symptoms with your doctor to see if they have any suggestions?