Autonomic Dysfunction

Posted by mrstigger49 @mrstigger49, Jan 15 11:22am

Hi!
I’ve had Autonomic Dysfunction since childhood but not formally diagnosed until in my 60’s. I’m 75.
I just fainted and fell week before last, resulting in my 10th reported concussion.
I love life but it sure gives me some unappreciated ups & downs!
Luckily, I pick myself up, brush myself off and go until the next time…😊

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Hi,
I have autonomic polyneuropathy (ANS) with CSVD, CKD 3B, T2 diabetes, IBS, low Sella, osteoarthritis in the knuckles and one hip.
The Autonomic nerve is what controls our body functions that are automatically done without our thinking, Heart beating, blood pressure, bowel, bladder digestion and more. The autonomic nerve is one of two main nervous systems in the body, the other relates to our limbs, touchy feelie stuff and so on under the title of Neuropathy. With autonomic polyneuropathy I get to experience both nervous systems short comings, lucky me!
My specialists finally aknowledged there is nothing they can do and I should expect it to get worse. All that can be done is to play with treating the symptoms and not very successful either. I still have a semblance of stomach function but as it gets worse it has taken over the entire digestive system permanently from throat to bowels and bladder.
For me it appears that lots of small, (seemed small to me at the time), health issues have contributed to my ANS with a serious bout of Champylotacter being the nail in the coffin, causing the CKD and IBS and now the ANS.
I put up with the pain and discomfort blocking it out with activities diverting the mind as the only alternative is death. There is little point in being medicated up to the eyeballs as I don't see that as life. I'm determined to go as long and hard as I can. In doing so I have found ways to manage my symptoms or just ignore them that affords me the abilities to carry on doing what I have always done, but in a somewhat reduced way. Upshot is I have to manage the situation as and how I see fit, altering my daily work load with the symptoms that present each day and they are not always the same apart from the digestive system.
It is what it is, I can't change it, can't cure it and can't treat it successfully, I have stopped playing with it and am attempting to get on with life despite it. It does what it wants and I try to do what I want, I don't always win but none the less I keep trying to succeed.
Cheers

REPLY

Hi. At 75 I have lived with (falling/fainting/vertigo/nausea/migraines/chest pain/ shortness of breath w/activity) from early childhood but went undiagnosed until age 52 - then diagnosed with Neuro-Cardiogenic Syncope by a well known cardiologist from Philadelphia. Then in 2017 diagnosed after extensive testing at UCH Colorado with Autonomic Dysfunction aka Dysautonomia.
I have Rheumatoid Arthritis; Spondyloysis;
lost 50% of hearing following a mystery virus; CKD III, Hypothyroid, Fibromyalgia, Chronic Fatigue Syndrome following a spider bite in 2003.
Have developed Post-Shingles Neuropathy & Polyneuropathy.
Whatever’s headed my way health-wise, I am grateful to the Heavens that each new day, “I have one more chance to make a difference in someone else’s life.”

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