Autonomic Dysfunction

I can only imagine what it's like to be so afflicted, but the concussions are especially worrisome. I know you have heard all the jokes about wearing a motorcyle helmet when you're on your feet...

You give the impression of being somewhat upbeat, your condition notwithstanding. Atta girl!! 😀

Do you have a protocol for standing? My wife gets woozy spells, and I keep reminding her to sit on her bed for a few seconds, do several semi-rises and then sit again, try to get her blood pressure up, and to see if she feels unstable. That does a pretty good job, and it can be done when seated at a table or relaxing watching TV or at a desktop computer, as examples of other circumstances.

@mrstigger49 have you ever been to a dysautonomia clinic? Take low dose hydrocortisone was once suggested to my daughter, who nearly faints with heat and has several autoimmune issues. Have you seen a cardiologist- I assume so in all this time! Functional medicine MD's were also helpful to my daughter.

I have been reading about limbic system training (Primal Trust looks like the best online program) and vagal nerve training with breathing and touch (polyvagal theory) for some of my own issues. Basically trying to address brain to body and body to brain, if you will. It's a lot but interesting.

I fear my response is not helpful but wanted to respond anyway because this is difficult- and you've had it a long time!