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Autoimmune Diseases are relentless

Posted by lovelyday @lovelyday, Jun 3, 2023

Could this be neurological puffy face at times upon waking up dehydrated tremor's upon waking up at times where head shakes inflammation & food is killing me I was tested for gluten it came back okay ringing in my ears can get worse with food and the chronic pain is there it never leaves you ALONE bones joints intestines environmental so much is connected 😥

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grammy82 | @grammy82 | Jun 12, 2023
In reply to @mafalda "I just got my 3rd rejection to my 3rd time application for Mayo Clinic. With the..." + (show)
@mafalda

I just got my 3rd rejection to my 3rd time application for Mayo Clinic. With the 2 former negated petitions, I thought it was because of the pandemic. But no, I just got rejected again. I was diagnosed with CIDP 2 1/2 years ago, but I serious doubt if CIDP is the right diagnosis or if there a second disease, because there are many symptoms that don't belong to CIDP. Besides my condition has gotten much worse, so why wouldn't they take me? I'm on Medicare, so I don't believe the insurance could be a problem.

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I'm so sorry....it is so much easier to live with the hell we know....than the one we don't. I do hope you are able to get to someone who can sort this out for you. Are you near any large city or teaching hospitals?💞

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