Autoimmune Diseases and Fatigue

Posted by JohnWBurns @johnwburns, Jul 13, 2016

Fatigue is probably intertwined with the definition of “illness”, almost any illness, but with some conditions fatigue becomes ingrained into the afflicted person’s being and is a feature of their daily life. Such is the case with the highest profile disorders, cancer and cardiovascular disease, but it is just as true with at least some autoimmune diseases. I have a long history of dealing with autoimmunity and the complaint that kept bringing me back to doctors persisting in finding out what was going on was the dogged lack of energy, vitality. I got guess after guess after guess and when I got the “answer” it was basically that fatigue was part of the deal with the autoimmune disease that I have, Sjogren’s, as well as I’m sure many others. So what I’m asking here is if you experience it, fatigue, how has it impacted your life and how do you deal with it? Have you found anything that you are sure mitigates it?

In my case its exercise, rest, and a fairly regulary low dose, around 50 mgs (usual recommended dose 200 mg) of modafinil, which I don’t take for Sjogren’s but rather for “Excessive Daytime Sleepiness” linked to Obstructive Sleep Apnea. I accidentally found out that it mitigated my general weariness. I’ve read some solid studies that found that American Ginseng can help cancer-related fatigue but apparently it doesn’t work for Sjogren’s, for me at least. Since fatigue impacts a person’s total life experience in all domains, any information that might lead to dampening or controlling it would be very helpful to a lot of folks I’m sure.

@lioness

You have a sense of humor and it's a must for all our problems.Research shows our body requires calcium @magnesium in all our body functions ,muscles,heart,nerves,.So I take Fibro Malic it's by Vitacost lots of what our muscles need ,magnesium,msm,malic acid diff.parts of muscles,connective tissue ,fibers I use this primarily.For creams I like Arnica gel,Epsom salt Rub also this is fairly new but Epsom salts aren't Gluten free food research suggests gluten is a problem.Vi t D3,5000 mg.Calcium use Tums at night and just before bedtime.For flare ups I drink Arnica tea get it at Rite Aid B vitamins thats about it hope some of this will help you Peach

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Forgot to tell you for pain I take Tramadol @night before bed if needed during day

@lioness

You have a sense of humor and it's a must for all our problems.Research shows our body requires calcium @magnesium in all our body functions ,muscles,heart,nerves,.So I take Fibro Malic it's by Vitacost lots of what our muscles need ,magnesium,msm,malic acid diff.parts of muscles,connective tissue ,fibers I use this primarily.For creams I like Arnica gel,Epsom salt Rub also this is fairly new but Epsom salts aren't Gluten free food research suggests gluten is a problem.Vi t D3,5000 mg.Calcium use Tums at night and just before bedtime.For flare ups I drink Arnica tea get it at Rite Aid B vitamins thats about it hope some of this will help you Peach

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@LIONNESS: i love GARLIC DILL PICKLES AND EAT QUITE A BIT. bAtEMPTEE bRAND IS A VERY GOOD TASTE. tHANKS AGAIN i AM ON MY WAY TO THE REFRIGERATOR. (MOUTH WATERING Peach

@lioness

You have a sense of humor and it's a must for all our problems.Research shows our body requires calcium @magnesium in all our body functions ,muscles,heart,nerves,.So I take Fibro Malic it's by Vitacost lots of what our muscles need ,magnesium,msm,malic acid diff.parts of muscles,connective tissue ,fibers I use this primarily.For creams I like Arnica gel,Epsom salt Rub also this is fairly new but Epsom salts aren't Gluten free food research suggests gluten is a problem.Vi t D3,5000 mg.Calcium use Tums at night and just before bedtime.For flare ups I drink Arnica tea get it at Rite Aid B vitamins thats about it hope some of this will help you Peach

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move over pickles so i can drink the juice and buy another jar tomorrow. peach

Mentor- I have had Parkinson's for about 5 years now- my fatigued the past 6 months- I can barley move at times, my immune system was really low last year and I had a few IV bottles of Iron- which helped a little. What is your thoughts and experience with this? Thanks John James

Hello @johnjames — I have no experience with iron iv treatments other than knowing it's for treatment when your body doesn't have enough iron which can cause anemia. I did find a good overview on the Cleveland Clinic's website here:

https://my.clevelandclinic.org/health/treatments/14571-iron-intravenous-iv-infusion-as-anemia-treatment

Were you diagnosed with low iron?

John

@johnjames

Mentor- I have had Parkinson's for about 5 years now- my fatigued the past 6 months- I can barley move at times, my immune system was really low last year and I had a few IV bottles of Iron- which helped a little. What is your thoughts and experience with this? Thanks John James

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@johnjames

Nice to hear from you John! I'm glad that you have experienced some help with the iron infusions.

Teresa

@lioness

You have a sense of humor and it's a must for all our problems.Research shows our body requires calcium @magnesium in all our body functions ,muscles,heart,nerves,.So I take Fibro Malic it's by Vitacost lots of what our muscles need ,magnesium,msm,malic acid diff.parts of muscles,connective tissue ,fibers I use this primarily.For creams I like Arnica gel,Epsom salt Rub also this is fairly new but Epsom salts aren't Gluten free food research suggests gluten is a problem.Vi t D3,5000 mg.Calcium use Tums at night and just before bedtime.For flare ups I drink Arnica tea get it at Rite Aid B vitamins thats about it hope some of this will help you Peach

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Haha I keep a jar in demand I love sauerkraut

@lioness

You have a sense of humor and it's a must for all our problems.Research shows our body requires calcium @magnesium in all our body functions ,muscles,heart,nerves,.So I take Fibro Malic it's by Vitacost lots of what our muscles need ,magnesium,msm,malic acid diff.parts of muscles,connective tissue ,fibers I use this primarily.For creams I like Arnica gel,Epsom salt Rub also this is fairly new but Epsom salts aren't Gluten free food research suggests gluten is a problem.Vi t D3,5000 mg.Calcium use Tums at night and just before bedtime.For flare ups I drink Arnica tea get it at Rite Aid B vitamins thats about it hope some of this will help you Peach

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Good for you

@johnjames

Mentor- I have had Parkinson's for about 5 years now- my fatigued the past 6 months- I can barley move at times, my immune system was really low last year and I had a few IV bottles of Iron- which helped a little. What is your thoughts and experience with this? Thanks John James

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So good to hear from you @johnjames. It's been a while. I noticed that you're not following the Parkinson's Disease group. Might I suggest that you follow the group so that you don't miss any posts? Here's how:
1. Go to the Parkinson's Disease group https://connect.mayoclinic.org/group/parkinsons-disease/
2. Click +FOLLOW just below the description.
3. Select "Email me when new pots appear and include in my email digest"
4. Click UPDATE.

You might be interested in this discussion:
– Ferrlecit Infusions for Ferritin Iron Deficiency https://connect.mayoclinic.org/discussion/ferrlecit-infusions-for-ferritin-iron-deficiency/

John, how have the iron infusions helped you?

@johnbishop

Hello @johnjames — I have no experience with iron iv treatments other than knowing it's for treatment when your body doesn't have enough iron which can cause anemia. I did find a good overview on the Cleveland Clinic's website here:

https://my.clevelandclinic.org/health/treatments/14571-iron-intravenous-iv-infusion-as-anemia-treatment

Were you diagnosed with low iron?

John

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I never heard of low iron ,won't taking iron pills help?My brother had to much iron and had to f be blood everytime the blood bank was in town

@johnbishop

Hello @johnjames — I have no experience with iron iv treatments other than knowing it's for treatment when your body doesn't have enough iron which can cause anemia. I did find a good overview on the Cleveland Clinic's website here:

https://my.clevelandclinic.org/health/treatments/14571-iron-intravenous-iv-infusion-as-anemia-treatment

Were you diagnosed with low iron?

John

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John I wonder about fermented food like sauerkraut and veggies fermented wonder if taking more of this would help with chronic pain? Anyone?

@johnbishop

Hello @johnjames — I have no experience with iron iv treatments other than knowing it's for treatment when your body doesn't have enough iron which can cause anemia. I did find a good overview on the Cleveland Clinic's website here:

https://my.clevelandclinic.org/health/treatments/14571-iron-intravenous-iv-infusion-as-anemia-treatment

Were you diagnosed with low iron?

John

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Good question Lioness. I've never heard of fermented food helping with chronic pain but you may be onto something:

Self Help for Chronic Pain – Nourish Holistic Nutrition
http://nourishholisticnutrition.com/self-help-for-chronic-pain/

Inclusion of Fermented Foods in Food Guides around the World
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4303846/

How Fermented Foods and Probiotic Supplements Can Help Women with Chronic Pelvic Pain
http://integrativewomenshealthinstitute.com/fermented-foods-and-probiotics-for-women-with-pelvic-pain/

John

@johnbishop

Hello @johnjames — I have no experience with iron iv treatments other than knowing it's for treatment when your body doesn't have enough iron which can cause anemia. I did find a good overview on the Cleveland Clinic's website here:

https://my.clevelandclinic.org/health/treatments/14571-iron-intravenous-iv-infusion-as-anemia-treatment

Were you diagnosed with low iron?

John

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@johnbishop and @lioness

I have head a lot about fermented foods from websites that are frequented by people with neuroendocrine tumors (NET). As many of these tumors are in the digestive tract a lot of NET folks have had multiple surgeries and now have diarrhea. They have discussed on different forums about using it to help with electrolyte balance. I've never had to use it myself, but it appears to be something used by lots of folks. So a spoonful of pickle juice certainly can't hurt much!

Teresa

@johnbishop

Hello @johnjames — I have no experience with iron iv treatments other than knowing it's for treatment when your body doesn't have enough iron which can cause anemia. I did find a good overview on the Cleveland Clinic's website here:

https://my.clevelandclinic.org/health/treatments/14571-iron-intravenous-iv-infusion-as-anemia-treatment

Were you diagnosed with low iron?

John

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I am a believer in apple cider vinegar. I try to drink two or three glasses of water with 1 or 2 teaspoons of raw organic apple cider vinegar every day to help with the digestive tract and it does seem to be helping.

@johnbishop

Hello @johnjames — I have no experience with iron iv treatments other than knowing it's for treatment when your body doesn't have enough iron which can cause anemia. I did find a good overview on the Cleveland Clinic's website here:

https://my.clevelandclinic.org/health/treatments/14571-iron-intravenous-iv-infusion-as-anemia-treatment

Were you diagnosed with low iron?

John

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Yes it will our stomach is so depleted of hydrochloric acid because of some say overuse of stomach medicine the vinegar or pickle juice will help replace it

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