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Autoimmune diseases

Posted by debbieann18 @debbieann18, Sep 12 4:22am

So I have emphysema which I've only just found out it's auto immune disease,that answered my question as to why my platelets are always high,it's due to inflammation of the lungs,also hypothyroidism,and I recently had an operation and got some bold patches in my hair which gp told me was alopecia aerto which is autoimmune,my life has been flipped upside down the last ten years,I am no longer able to a lot of what I did,and it's exhausting,also have fibromialgia and 5 bulging discs in my spine,mental health is of the scale,but I just sit and worry all the time,my anxiety is beyond point I don't know what to do,I get sent from pillar to post ,I'm at my wits end,any advice would be helpful

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can9 | @can9 | Sep 20 7:17pm

Hello again everyone,
As previously shared about my son, His name is Joseph. He has ANTI-GFAP AIE with possible coexisting seronegative AIE. (cannot identify the antibody responsible) He however is seeing his Neuroimmunologist, Physiatrist and possible a Neuropsychologic. Would love to hear from anyone, I am doing all that I can, I am a mom of Joseph and Luke, both are my happiness and blessing.
Take care
Pam

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suetex | @suetex | Sep 21 4:31pm
In reply to @can9 "Hello again everyone, As previously shared about my son, His name is Joseph. He has ANTI-GFAP..." + (show)
Profile picture for can9 @can9

Hello again everyone,
As previously shared about my son, His name is Joseph. He has ANTI-GFAP AIE with possible coexisting seronegative AIE. (cannot identify the antibody responsible) He however is seeing his Neuroimmunologist, Physiatrist and possible a Neuropsychologic. Would love to hear from anyone, I am doing all that I can, I am a mom of Joseph and Luke, both are my happiness and blessing.
Take care
Pam

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As a Mom myself, I know you are doing all you can and themsome. Also, please take some time for yourself. You need it and deserve it. Could you please let us uneducated know what all the initials stand for? Some of us need a little help.

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