At a loss, multiple consultations still no answer...any idea?

I've finally received a referral to see a neurologist. What's strange is that for last three days my headaches, tingling and sore eyes have vanished. Where now I'm just suffering with a sore throat and stomach. Do you still think it is worth going to discuss what's happened to eliminate anything sinister taking place? Unfortunately, my appearance hasn't changed if anything I've gotten paler. However, I'm relieved that some of my pain has left.

Go! And discuss everything! The neurologist will want to know all that has happened.Emphasize what went on before the stomach and throat problems. Taken by itself, the stomach probs could suggest stress and, of course you have stress ! You’ve been through a lot. Be a good advocate for yourself. Will you be sure to tell us about the meeting with the neurologist? Becky

You're right Becky, thank you for your words of wisdom.

I'm not sure how true it is but I have heard that you can go into remission with autoimmune diseases. Where you may feel normal for a few days only for your symptoms to remerge. I've probably gone from 55% to 75%. Which is a drastic improvement that I'm grateful for, but something clearly isn't right.

Absolutely, I'll probably go quiet for a while as my consultation isn't until next month. If anything drastic changes I'll post an update, all the best.

GO!!!!!!! Don't delay. You must take advantage of every opportunity to see whomever possible, and you must be your own advocate. Becky is so wise and you are going to find out what's causing you these problems. Yes, something may improve and in a few days get worse or something else may happen, you don't know. Find out what is happening, get a solid diagnosis and treatment and get it under control.

Goody! You see a neurologist! Giant step forward. Best and blessings, elizabeth

You're right Becky, thank you for your words of wisdom.

I'm not sure how true it is but I have heard that you can go into remission with autoimmune diseases. Where you may feel normal for a few days only for your symptoms to remerge. I've probably gone from 55% to 75%. Which is a drastic improvement that I'm grateful for, but something clearly isn't right.

Absolutely, I'll probably go quiet for a while as my consultation isn't until next month. If anything drastic changes I'll post an update, all the best.

Yes, definitely go! It was my neurologist who ordered the correct labs to lead me to at least a partial diagnosis, and more importantly to a rheumatologist and a hematologist. Without those labs and follow up referrals I’d still be nowhere. I find my symptoms do change and certainly vary in severity.

Yes, definitely go! It was my neurologist who ordered the correct labs to lead me to at least a partial diagnosis, and more importantly to a rheumatologist and a hematologist. Without those labs and follow up referrals I’d still be nowhere. I find my symptoms do change and certainly vary in severity.

That's reassuring, thank you. I'm just baffled as to how I can feel so bad for 5 months to then feel how I do know. I just had this strange notion that they wouldn't be able to detect anything due to how I am now, but that obviously isn't the case. Perhaps the supplements I've been taking have done some good. With your symptoms do you have days where you feel almost "normal".

There are days when I have more pain, which typically corresponds to days I grocery shop, stand on my feet for extended hours, garden, etc. I do also have days that I have less overall symptoms for a period of time, then they return and I have days that I get different symptoms that disappear. I’ve determined over the past two years that bodies can be extremely weird and autoimmune diseases especially so! As @becsbuddy says…I keep my symptoms log.