Ashamed: I think about (and plan for) dying. Do you?

Posted by olgamarie @olgamarie, Feb 7, 2021

Hi, did anyone, after there cancer and COPD diagnosis start to think about dying? After almost four years, I still do, all the time. Planning my funeral, how to leave my children, how it will be to be in a coffin. Bizarre, I know.

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@soupycampbell

I so totally agree with you! I have no idea at this point where I am as far as time left but I know I’m done with biopsies etc and feeling like crap after them and getting weak. I just want to be my normal active self (before tests) and enjoy my life the best I can for as long as I can! I’m 85 and just bought myself another (much less powerful motorcycle) more like a scooter but goes faster. So hoping this weakness goes away soon. Good luck to you and prayers you get lots of good quality time!

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@soupycampbell I love your screen name. It made me smile. I love that you bought a scooter and plan to make the most out of the time you have left. It seems you made a good decision. Prayers for you. Enjoy!

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I've had stage IV breast cancer for 2.5 years, other medical issues and scary side effects from meds, but I still have decent quality of life. I tend to think about what all I need to take care of before I go so my son won't have to do it. I've taken care of and organized all the paperwork, cleaned out closets of excess stuff. I even have a stack of letters I've written and dated to those closest to me to go out after I've passed or maybe if I'm in hospice, but I wanted to have something written prepared in case something happened suddenly. I don't delay in writing kind letters and notes now, but some things are better said at the end or might worry people if I sent the letters now. My last "need to do" is to do something with the thousands of photos and get them organized and down to a more reasonable amount. Due to fatigue, getting through my list has taken longer than I had hoped. I do make sure I'm enjoying my days and having some fun in between tasks. I don't dwell on it all, but try to use the advanced notice to my advantage. I feel lucky in that respect.

You have no reason to feel ashamed. Just allow yourself to enjoy life to the fullest while you're taking care of business. Let people remember the best version of you laughing and smiling. Prayers for you.

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@soupycampbell

I so totally agree with you! I have no idea at this point where I am as far as time left but I know I’m done with biopsies etc and feeling like crap after them and getting weak. I just want to be my normal active self (before tests) and enjoy my life the best I can for as long as I can! I’m 85 and just bought myself another (much less powerful motorcycle) more like a scooter but goes faster. So hoping this weakness goes away soon. Good luck to you and prayers you get lots of good quality time!

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You go girl!!!! 🏍️

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@ellengrubb

I agree with mir123 and quimbie. My prognosis is 5 months. I’ve chosen quality of life over chemo & other drugs that have unpleasant side affects and very low longevity rate. I feel fine at this stage, it know I won’t always feel this good. I’m 75 & have lived a good life, made a difference in other’s lives and continue pouring into others.
I am a Christian and look forward to my new home in heaven.

My Living Will has been updated, mortuary insurance in place, funeral ‘suggestions’ written, contact list in a spreadsheet, PowerPoint of my life nearly completed, individual letters to my children and grandchildren almost ready to share with them individually.
Ok, so that’s all a bit OCD!
As the weather clears and warms, I expect to be outside and active & interactive. So, having this tedious stuff out of the way, PERHAPS I can relax. (That’s tough for us OCDers 😄)
I am at peace with my lot.

Jump to this post

I so totally agree with you! I have no idea at this point where I am as far as time left but I know I’m done with biopsies etc and feeling like crap after them and getting weak. I just want to be my normal active self (before tests) and enjoy my life the best I can for as long as I can! I’m 85 and just bought myself another (much less powerful motorcycle) more like a scooter but goes faster. So hoping this weakness goes away soon. Good luck to you and prayers you get lots of good quality time!

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@bonsai799

I may be new to cancer but you shouldn’t ever be ashamed specially of that. My god, your given a diagnosis of a terrible disease and they don’t give you a hand book at the same time on how to deal, handle, react, feel, answer, dress, talk, explain and on and on the never ending things that come with a cancer diagnosis. Like answering questions from your 10 year old grandson when he asks “Nana will you die before Christmas?” to question like “Are you going with cremation and a small wake or a whole funeral?” So please don’t feel ashamed for asking, questioning, wondering about anything when your diagnosis, it’s a hurricane of emotions with a roller coaster of information topped off with a earthquake of people wanting and needing knowledge. I look at it like this “Cancer is like a designer outfit, it’s one of a kind, but it wears on everyone differently!” Ask as much as you want, knowledge is power!

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I know exactly about the whirlwind still in it. first month that is all I thought about. Then what is suppose to happen next do I take care of myself or just accept dying. This is the worst thing I went through. Anger, shame, embarrassment, constant crying. everyone discussed what I needed to do, what really matters is acceptance and 1 day at 2am god said accept it and get on with it.

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@ellengrubb

I agree with mir123 and quimbie. My prognosis is 5 months. I’ve chosen quality of life over chemo & other drugs that have unpleasant side affects and very low longevity rate. I feel fine at this stage, it know I won’t always feel this good. I’m 75 & have lived a good life, made a difference in other’s lives and continue pouring into others.
I am a Christian and look forward to my new home in heaven.

My Living Will has been updated, mortuary insurance in place, funeral ‘suggestions’ written, contact list in a spreadsheet, PowerPoint of my life nearly completed, individual letters to my children and grandchildren almost ready to share with them individually.
Ok, so that’s all a bit OCD!
As the weather clears and warms, I expect to be outside and active & interactive. So, having this tedious stuff out of the way, PERHAPS I can relax. (That’s tough for us OCDers 😄)
I am at peace with my lot.

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Your attitude is inspirational! I think that ordinary mundane things and spiritual things often reflect each other--so taking care of practical matters can really bring a sense of peace.

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I agree with mir123 and quimbie. My prognosis is 5 months. I’ve chosen quality of life over chemo & other drugs that have unpleasant side affects and very low longevity rate. I feel fine at this stage, it know I won’t always feel this good. I’m 75 & have lived a good life, made a difference in other’s lives and continue pouring into others.
I am a Christian and look forward to my new home in heaven.

My Living Will has been updated, mortuary insurance in place, funeral ‘suggestions’ written, contact list in a spreadsheet, PowerPoint of my life nearly completed, individual letters to my children and grandchildren almost ready to share with them individually.
Ok, so that’s all a bit OCD!
As the weather clears and warms, I expect to be outside and active & interactive. So, having this tedious stuff out of the way, PERHAPS I can relax. (That’s tough for us OCDers 😄)
I am at peace with my lot.

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I commend you as this makes life more enjoyable as not worrying about what family will have to do in event of death. I made my living will and took care of some other financial matters and made sure things were in order and advised my adult sons about what I wanted to be done. Gave me peace about it. I am still going and doing as well as can be but knowing things in place does make a difference. Enjoy life to the fullest.

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I'm obviously in a minority, but I'm fine thinking about death. When I first got a poor prognosis--neuroendocrine tumor 8 months ago--I immediately pre-paid and pre-planned my funeral. I come from an immigrant family, and was raised to not burden the family financially by ignoring these things. I bought a plot almost 30 years ago, when I was in my early forties. I've always liked graveyards--the peacefulness, the urban oasis, the history and sometimes famous people buried there. I'm a great fan of Harriet Tubman, and once visited her grave and brought flowers.
That said, I'm interested in "life to its fullest." We can try to remember that sadness, exhaustion, even dullness are part of life. To me, being a person--being myself--is the fullest. I almost died when I was 21, when I first learned this. Now, as I currently feel pretty good, I see my friends, dote on my husband, walk, read, write, do a bit of freelance in my field, dance, pray, hang out with daughter & grand baby, take road trips, go to concerts, am out in nature...it's beautiful, and I love it. I've basically retired from "shoulds." I'm quite aware of mortality, but the last six months--once I got over the initial shock and made treatment decisions--have been among the happiest in my life. Yes, I'm also worried and concerned. But this is very special. Best regards to all on this chat.

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