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Article about Long COVID that has good information

Posted by jeindc @jeindc, Feb 20 1:22pm

This week, I took another shower. One every 4-5 days is my max. (I'm not terribly dirty or sweaty and my spouse is tolerant!) This week, two. The energy it takes to do it and dry off and put something back on is sometimes too much. And while I'm not at all as active as this author, I try daily to at least leave my 'bed' (I can no longer lie down; I sleep finally in a recliner after 3 years in a club chair because of the LC rash, and exacerbated spinal arthritis and stenosis) to move a bit, go to my desk and type out instead of pecking on smartphone.) https://www.theguardian.com/society/2026/feb/18/long-covid-symptoms-treatment

I have a new ID doc and will have extensive blood work done soon for him to review. He said, in our phone consultation I will be frustrated with how little is still known. I told him that if he were willing to just listen - really listen - and ask questions, maybe we could find some help or at least being heard would help. The "down" days or the "anger" days are the toughest.

JE

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law59 | @law59 | Feb 27 6:46am
In reply to @jeindc "@law59 how I understand. I'm about to post another about mental health and the therapists who..." + (show)
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@law59 how I understand. I'm about to post another about mental health and the therapists who have not kept up with long COVID and so finding help is so tough. When I read that "it's not just me", I know it's not. The more WE share and ask someone will "get there". Sadly the research in the US is not well-funded if funded at all. I'm seeing far more done in India than here. The "Long COVID google alert" (google dot com/alerts and add it) is how I am reading more.

To us! To tears when we are comforted and when we are frustrated.
JE

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Hi @jeindc thank you for your hug and words about this journey and the wonderful remark tears of frustration or comfort. We can still show/do things from our professional pasts despite this new challenging life and so appreciate you remind us of that!🌈

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debbiedsf | @debbiedsf | Feb 27 8:13am
In reply to @jeindc "@debbiedsf - envious that you have a doctor and system at The OSU that is both..." + (show)
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@debbiedsf - envious that you have a doctor and system at The OSU that is both following, researching and guiding. Tho' I'm sure many of this know this from experience, when a doctor or physical therapist (really? one devoted to PT for Long COVID patients??) is there to help you to say "my doctor and PT recommends..." so that you have permission to slow down, it carries more weight with others, so I've experienced, v. saying "I just can't do more".

I do know to plan ahead for days with multiple Zoom or like meetings for the day and the days before and after. I carefully schedule time around days I have to go out for doc appts., etc.

Your input is so appreciated as will be the PT you've learned. Would you too with that explain more about your symptoms and if the PT is designed for your symptoms and differs for others in the programs who have differing symptoms or abilities?

Thanks.
JE

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@jeindc
I guess I should stop complaining about how many months I waited to see the doctor, the month I waited to see the PT, and the waitlist I’m still on to see the other therapist that I was referred to (talk therapy to increase capacity for thinking and social activity). 😉

I’ll post the PT info - and the symptoms it is supposed to help- in a new thread. I’m trying to pull it together now.

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84forward | @84forward | Feb 28 5:44am
In reply to @debbiedsf "@jeindc I guess I should stop complaining about how many months I waited to see the..." + (show)
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@jeindc
I guess I should stop complaining about how many months I waited to see the doctor, the month I waited to see the PT, and the waitlist I’m still on to see the other therapist that I was referred to (talk therapy to increase capacity for thinking and social activity). 😉

I’ll post the PT info - and the symptoms it is supposed to help- in a new thread. I’m trying to pull it together now.

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@debbiedsf PT appt is set for 3/2. Finally. 5 months to get to this point. Frustrating? my my YES. At 85 I feel like the can that gets kicked down the road. Vertigo and Fatigue are my constant companions. Let’s stay connected and compare PT components and results. Onward!

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