Aromatase Inhibitors: Did you decide to go on them or not?

Posted by nanato6 @nanato6, Oct 12, 2018

Nanaloves: I’m about to start arimidex and just feel that the contraindications , bone issues etc. are overwhelming. I’m 70 years old, dodged a bullet I feel with zero stage DCIS but the follow up is pretty much no different then if it was more aggressive. I’ve just done 33 treatments of radiation and now they advise arimidex as a preventative. I’m not sure with the beginnings of arthritis and lower back. sensitivity already that I should take it. Anyone not take it and not have a recurrence within the 5 years.

Is anyone taking any of the estrogen inhibitors with ZERO or very minimal side effects?

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@buckimom

My husband hasn’t been very patient either. Doesn’t like disruption to his routine. I’m 74 and married 40 some years (can’t remember 😳) & felt quite comfortable telling him to get used to it; I have at least 4 years to go, lol. I feel so fortunate to have found this forum and wish all of us the very best.

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Hoping things go better with your husband…sometimes they need a little direction. Do you go to any cancer support meetings? If so, can you take him with you – he may get a better understanding. My hubby used to get frustrated with me while in my 40s I underwent surgical menopause and the hot flashes and sweats were abysmal for years then a few years ago he went through prostate cancer and had to have female hormones prior to treatment…he learned real fast what I had been going undergoing and became more understanding after that…when he forgets, I remind him!

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@trixie1313

Hoping things go better with your husband…sometimes they need a little direction. Do you go to any cancer support meetings? If so, can you take him with you – he may get a better understanding. My hubby used to get frustrated with me while in my 40s I underwent surgical menopause and the hot flashes and sweats were abysmal for years then a few years ago he went through prostate cancer and had to have female hormones prior to treatment…he learned real fast what I had been going undergoing and became more understanding after that…when he forgets, I remind him!

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@trixie1313 -Hi Trixie, I have a fabulous daughter (whose twin brother died of cancer at age 15) is a Director of clinical cancer trials for a large company. She put hubby on “a need to know basis” and is a wonderful partner! My husband is who he is and I’m okay with that. He does what ever I ask. It’s all working😊

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@buckimom

@trixie1313 -Hi Trixie, I have a fabulous daughter (whose twin brother died of cancer at age 15) is a Director of clinical cancer trials for a large company. She put hubby on “a need to know basis” and is a wonderful partner! My husband is who he is and I’m okay with that. He does what ever I ask. It’s all working😊

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So very sorry for the loss of your son. Perhaps that's why your husband has trouble understanding what you are going through – could be he is so very frightened he will lose you and is protecting his emotions. All the best to you.

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@batm

Correct, no new meds until this is resolved. I had lumpectomy last summer followed by radiation. Given all the side effects I had with Arimidex and now the increased heart rate I’m not certain I’m willing to try aromasin which is what the oncologist has recommended I try next.

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@batm please, let me know how aromasin works!

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@gwinter

@batm please, let me know how aromasin works!

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@gwinter – after further discussion with oncologist he agreed I’d probably not tolerate aromasin any better than I did the arimidex. I’m just not willing to go thru that again. So new direction is to try tamoxifen, I’ll be starting soon.

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What about Femura as an alternative?

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@batm

@gwinter – after further discussion with oncologist he agreed I’d probably not tolerate aromasin any better than I did the arimidex. I’m just not willing to go thru that again. So new direction is to try tamoxifen, I’ll be starting soon.

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Hoping it works out for you.

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@batm

I was only on Arimidex for about a month, the side effects were too much; also experienced an increased heart rate. My resting heart rate should be 60-70, its been floating between 83 and 103. Have no history of heart issues, no family history either. Echo was fine, EKG fine, bp fine, bloodwork fine. Seems coincidental that I’m feeling in now. Anyone else have any heart issues during or after Arimidex?? I’m not willing to try any other AI’s until this is resolved, cardiologist agrees.

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I had to go off them after 3 months . I am not ready for the nursing home at 64

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@cancersucks

I had to go off them after 3 months . I am not ready for the nursing home at 64

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What did your oncologist say about you going off of them?

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Sorry to read that so many women have had adverse side effects from arimedex. Diagnosed with stage one BC, no lymph involvement, Followed by 28 radiation treatments. I have been taking Arimidex For the past eight months and have Experienced very few side effects. Some hair loss, mid day fatigue, Maybe some brain fog which might be due more to my age than the drug. I have no joint pain nor any other issues related to the drug. Maybe I have been fortunate or those side effects may still be in my future.

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@mimi99

I decided against it. I was diagnosed earlier this year, stage one,
negative nodes. I had lumpectomy and 3 proton beam treatments. I am
currently recovering from reverse shoulder replacement, have had two knee
replacements, lots of arthritis, and fibromyalgia. I am almost 70,
currently taking tamoxifen, and fingers crossed evdrything will go well.

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Any side effects from Tomixifen?

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