1. < Parkinson's Disease

Having trouble with your voice being soft or trouble swallowing?

Posted by ethel2017 @ethel2017, May 31 5:01pm

I have PD. I was diagnosed in 2017. Shortly there after I heard about Parkinson Voice Project. They are a non profit in Richardson, Texas. Their mission is To help people with Parkinsons and related disorders to regain and retain their speech and swallowing. They have a program called SPEAK OUT! and there is no charge for you to receive this therapy. You can contact them at Parkinsonvoiceproject.org and they will help you find a Speech Language Pathologist trained in SPEAK OUT! If you don't drive they offer the training online. So, if you have problems with your voice or swallowing please call them. I went through the therapy and after that I became an Advocate for them. Also, there is lots of good information on their home page. The What Is Parkinson's video under Education and Training is really great. If you have any questions please ask.

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

Moderator
Lisa Lucier, Moderator | @lisalucier | Jun 2 2:58pm

Hi, @ethel2017 - welcome to Mayo Clinic Connect. Wondering about your journey with Parkinson's: When were you diagnosed? What have been your most challenging symptoms, and how were they treated?

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ethel2017 | @ethel2017 | Jun 18 12:54pm

Hi, Sorry took me a while to respond. June has just been a hectic month, so far. I was diagnosed with PD in 2017. I have a tremor in my fight leg. It is controlled quite well with medication. I also take meds for Dyskinesia. I am an Advocate with Parkinson Voice Project. Their mission is to- To help people with Parkinson’s and related disorders regain and retain their speech and swallowing. A very important part of everyday life.

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1 reply
janet42 | @janet42 | Jun 21 2:05pm
In reply to @ethel2017 "Hi, Sorry took me a while to respond. June has just been a hectic month, so..." + (show)
@ethel2017

Hi, Sorry took me a while to respond. June has just been a hectic month, so far. I was diagnosed with PD in 2017. I have a tremor in my fight leg. It is controlled quite well with medication. I also take meds for Dyskinesia. I am an Advocate with Parkinson Voice Project. Their mission is to- To help people with Parkinson’s and related disorders regain and retain their speech and swallowing. A very important part of everyday life.

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I would like any information available about losing your voice. I was diagnosed with PD in May of this year. One of my symptoms is hoarse voice.

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ethel2017 | @ethel2017 | Jun 21 11:00pm

Hi Janet42,

I would be happy to provide you with information about SPEAK OUT! therapy provided by Parkinson Voice Project. I can mail you a brochure if you don’t mind giving me your address. 1) You can also go to their website at ParkinsonVoiceProject.org. and under Education and Training there is a great video called “What is Parkinsons”. 2) You will need to go to a Speech Language Pathologist that is trained in the SPEAK OUT! Program. At the top of the page there is a link to find a SPEAK OUT! Provider. Click on that link and then choose U.S. SPEAK OUT! Therapy and Research Centers and see if there is one in your state. If there is then there will be no charge for your treatment, which you should be able to receive either virtually or in person. If your state is not listed then choose the next choice to find a certified SPEAK OUT! Provider in your state. 3) look under Our Program and watch the testimonials. If you need help I would be happy to look up the information for you, I just need to know what state you live in. Or call Parkinson Voice Project at 469-375-6500. - Rhonda

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1 reply
Moderator
Lisa Lucier, Moderator | @lisalucier | 5 days ago
In reply to @ethel2017 "Hi Janet42, I would be happy to provide you with information about SPEAK OUT! therapy provided..." + (show)
@ethel2017

Hi Janet42,

I would be happy to provide you with information about SPEAK OUT! therapy provided by Parkinson Voice Project. I can mail you a brochure if you don’t mind giving me your address. 1) You can also go to their website at ParkinsonVoiceProject.org. and under Education and Training there is a great video called “What is Parkinsons”. 2) You will need to go to a Speech Language Pathologist that is trained in the SPEAK OUT! Program. At the top of the page there is a link to find a SPEAK OUT! Provider. Click on that link and then choose U.S. SPEAK OUT! Therapy and Research Centers and see if there is one in your state. If there is then there will be no charge for your treatment, which you should be able to receive either virtually or in person. If your state is not listed then choose the next choice to find a certified SPEAK OUT! Provider in your state. 3) look under Our Program and watch the testimonials. If you need help I would be happy to look up the information for you, I just need to know what state you live in. Or call Parkinson Voice Project at 469-375-6500. - Rhonda

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