Are there any medical tests to prove LC?

Congratulations! That is a very rare thing indeed (based on my 30 years experience as a clinical social worker, helping others through this process maybe more than 100 times), and it offers hope. Thank you for sharing!

I have had nearly every blood test known to man; I have seen rheumatology, immunology, neuropsychology, PT, OT and Speech therapy. I have officially been diagnosed with LC for over a year, along with depression, anxiety, Chronic/Complex PTSD, degenerative disc disease in my spine (have had two surgeries, both in 2011), chronic daily migraine, chronic pain syndrome, Reynaud's syndrome (which is an autoimmune disease), fibromyalgia, mild cognitive impairment, chronic fatigue syndrome, etc. I am seeing a neurologist at the end of June. I was just diagnosed with small airway disease which is a complication of LC/vaccine injury, yesterday after a lung CT the day before, so now I have an inhaler. I have quickly developed some form of arthritis with LC, especially in my hands, elbows and shoulders. I'm sure I could go on and on. I feel like my PCP is thorough as more is learned about LC and, at times, I feel like a guinea pig sometimes...ugh.

What a mess.

My PCP and pulmonologist at St. Pat's in Missoula, Montana both staunchly deny the existence of long COVID. Is this the company song to be sung at Providence? Dunno... but they do have a self-help (or so it seems at first glance) service out of Vancouver, B.C. that deals specifically with long COVID, such as they acknowledge it via polite side-stepping and equivocation.

Overall I'm very pleased with my care via Providence-St. Pat's and their International Heart Institute.

But why the obdurate refusal from some providers in the same complex to acknowledge that long COVID exists?

If this is a Providence-promulgated position, Mayo and Cleveland Clinic and other giants in healthcare seem to disagree. Why can they not get together? And whatever happened to the seventeen doctors early in the COVID wars who spoke out in unison against what was going on, and haven't been heard from since?

My options here in Western Montana are limited.

When it comes to long COVID it's either self-help or nothing. And that is discouraging, mildly terrifying, bewildering, and maddening all at once. So I gather my own resources, such as they are, to fight against it.

Which leads me to a second level of questioning:

What could possibly motivate "We have no test for it, therefore we cannot diagnose it, even though the symptoms presented by our patients scream in our faces daily," position at St. Pat's/Providence?

Could it be word from the top down? Could NIH, with a lot of telltale tracks to cover, be controlling the narrative?

Could part of the difficulty (or most of it) in pursuing a disability claim for long COVID be a firewall put in place to prevent a run on government money via widespread LCV disability claims?

There are how many of us who would qualify, and is the medical/political complex that developed and unleashed this virus upon us now closing ranks to diminish a run on its cash?

And will there not be a "test" until Gates, et al have developed a "cure" that can be sold to the government at exhorbitant rates - as was the jab? The jab came in at a reported $3,500 per - until that figure sorta disappeared. $3,500 per jab for Bill Gates' start-up company Moderna times how many millions of innoculees?

Yes, I know... sounds like conspiracy theory and all that... but in my mind view the dots are too close together not to connect.

Thank God Mayo is strong enough, it seems, to stand virtually as a major healthcare provider as it stands with us, the debilitated survivors, in our battle with long COVID and the medical/political complex.

Hi @debbie75. I hope this helpful as too much to read past history. Getting the necessary in writing proof of the required loss of daily living in your medical records is one of the largest hurdles. Most records are not wtitten/formatted in that way and require providers to prepare separate statements specifically explaining that in the precise manner requested🙃. Hopefully your request to your providers provides this and helpful to all others here wirh quickest healing journeys🌈

Self advocate. 💯 As this is all still falls very much in the early stages of “RESEARCH, I’ve found so many of the stories and experiences here (in blog) echo that of mine… going on (3) years come this July 2025.
No, not all providers are good at taking notes or painting the most accurate picture. And so it goes…