Architectural Distortion and Asymmetry after diagnostic mammo

Posted by leen83 @leen83, May 2 12:50pm

Can’t help but be panicking right now. I went in for my first mammo (40yo), got called back immediately for diagnostic on left breast. They found a persistent asymmetry with architectural distortion but couldn’t definitively see it in the ultrasound. I also kept hearing the radiologist and tech talk about it being star shaped.

She noted a BI-RADS category 4 and with my personal lifetime risk of 21%, I’ll be going in for a stereotactic biopsy next week and also waiting on approval for MRI.

I’m just so scared but trying to stay positive that, best case scenario, it’s benign, worst case, it was caught early. I know I shouldn’t Google but I can’t help it.

Has anyone had experience with architectural distortion? What are the chances it’s malignant?

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@leen83
Welcome to Mayo Connect!
It’s definitely scary to get a questionable mammogram report.
As I understand it, most of these architectural distortions are benign.
If not- it was caught early.
I went through this 30+ years ago. I do remember that each step in the process of finding the answer is anxiety provoking.
Bring someone with you for the biopsy and for any meeting with a physician.
Try not to panic- one step at a time.
Please, let us know how the biopsy went.

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@leen83 I know this is scary and Dr. Google can bring up all kinds of things. I had assymmetry and architectural distortion on my mammo 2.5 yrs ago. After MRI and breast biopsy they found what is called a radial scar( not a scar at all) also called a complex schlerosing lesion and is considered a benign finding. I had a lumpectomy to remove it to make sure nothing bad was lurking in or around it. All was
good. I know the unknown causes a lot of anxiety and apprehension. Try to do something you enjoy while waiting for your next steps. Please keep us posted here in the forum. Sending positive thoughts and energy your way.

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Yes, I had architectural distortion noted in December. Turned out to be stage 1, triple positive invasive ductal CA. Prognosis is good, but the treatment is not fun. I hope yours is benign!!! Hang in there. It is hard to be patient, with all the testing.

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I had an asymmetry and architectural distortion found on mammogram and it was diagnosed as stage 1 invasive ductal carcinoma HER2+.
Fortunately it was small and I had a lumpectomy and accelerated partial breast radiation which was every other day for 5 days. Taking Anastrozole. My ONC type was low so thankfully I didn't need chemo.

I also tried to find anything I could on Google while waiting for the diagnosis and read that it could possibly be benign. The waiting and worrying is very stressful.
Prayers for a good outcome. Good luck.

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Thanks everyone for your experiences. Just had the biopsy earlier today (I felt like a car on a lift) and now begins the waiting game for the results. Hopefully I hear back on Friday, but they said Tuesday at the latest.

With my crazy family history of cancer, I always knew it was a possibility in theory, but it’s a whole different beast when you’re actually confronted with the real possibility of it.

I find myself plastering on a smile as I plan for things in the future with the kids, then breaking down behind closed door for the possibility I may not be able to do those things. I’ve even put a halt to taking on orders for my clients as a cake designer as I don’t know what the future holds. I think that’s the hardest part - being in limbo.

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@leen83

Thanks everyone for your experiences. Just had the biopsy earlier today (I felt like a car on a lift) and now begins the waiting game for the results. Hopefully I hear back on Friday, but they said Tuesday at the latest.

With my crazy family history of cancer, I always knew it was a possibility in theory, but it’s a whole different beast when you’re actually confronted with the real possibility of it.

I find myself plastering on a smile as I plan for things in the future with the kids, then breaking down behind closed door for the possibility I may not be able to do those things. I’ve even put a halt to taking on orders for my clients as a cake designer as I don’t know what the future holds. I think that’s the hardest part - being in limbo.

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Thinking of you, @leen83. I hope you will return to let us know what you learned.

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@leen83

Thanks everyone for your experiences. Just had the biopsy earlier today (I felt like a car on a lift) and now begins the waiting game for the results. Hopefully I hear back on Friday, but they said Tuesday at the latest.

With my crazy family history of cancer, I always knew it was a possibility in theory, but it’s a whole different beast when you’re actually confronted with the real possibility of it.

I find myself plastering on a smile as I plan for things in the future with the kids, then breaking down behind closed door for the possibility I may not be able to do those things. I’ve even put a halt to taking on orders for my clients as a cake designer as I don’t know what the future holds. I think that’s the hardest part - being in limbo.

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Hi! @leen83

Thoughts and prayers are with you during this uncertain times. I love your sense of humor relating yourself to the "lifted car":)

Surely being in limbo is a tough challenge; however, with your courage, strength and sense of humor I am certain you'll conquer any challenges ahead and still be able to enjoy quality time with your kids & family, for you are not alone and you'll never be alone with our supports.

Best wishes on the journey ahead!

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