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Arachnoiditis: Looking to talk with others

Posted by arannek72 @arannek72, Jul 3, 2018

I just got diagnosed with arachnoiditis. The radiologist found it on my MRI. I have had 7 steroid injections and I fear that they have caused this chronic situation. My back is worse than it ever was.

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uswpres1 | @uswpres1 | 9 hours ago
In reply to @archie2 "Hi Archie Here- Thanks for responding so quickly. Your symptoms are consistent with my experience and..." + (show)
@archie2

Hi Archie Here-

Thanks for responding so quickly. Your symptoms are consistent with my experience and those of many of the folks online. You seem to have a good understanding of what you’re being treated for and why. How did you symptoms start and when? Also, what major procedure have you had that you consider contributed to your Arachnoiditis. For example, I have had AA since 1978 and it came on after 2 laminectomies, an L3-5 fusion, and multiple Myelograms with OIL-BASED pantopaque (contrast) fluid. I was allergic to it. But also scaring in the spinal cord from surgery as well as blood on the surgical field all contributed in my case.
How did it happen for you? Who made the diagnosis? Thanks for responding. Archie.

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I had a laminectomy with fusion of L5-S1 in 2017, laminectomy of L3-4 in 2019, fusion of L3-4 in 2021 and finally a fusion of L-3 down to S1 in 2023. I believe my arachnoid was compromised in 19 as I awoke with issues in my legs that were not there prior to that surgery. The first mention of arachnoiditis was by radiologist following a MRI done in April of 2024. Two neurosurgeons and my neurologist concurred with that diagnosis and started me on pain management in May of 24. It’s been a lot to soak in to say the least and I know I haven’t begun to understand what’s in front of me.

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