1. < Blood Cancers & Disorders

Aplastic Anemia and vaccine influences

Posted by aeft @aeft, Feb 1, 2023

As a recent (12 mo) MUD stem cell transplant recipient I am faced with making a decision on pursuing a COVId vaccine. Prior to diagnosis with severe Aplastic Anemia in November 2021 , I had a mRNA vaccine series in June 2021.
During the last year I have heard from individuals including MDs , anecdotal concerns about the rise in Aplastic Anemia post COVId vaccines, particularly mRNA .
I also recently learned I have a recessive genetic pathology, a heterozygous Ragg 1 gene.
There appears to be growing anecdotal concern regarding the impacts of this on immune system functioning and specific vaccine response .
I am hoping this community may have members who can share similar experiences or concerns. I am also seeking MDs with specific expertise re rare Ragg 1 pathology and Aplastic Anemia and the influence of vaccines. Thank you .

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seawolf67 | @seawolf67 | Apr 24, 2023

I also was recently diagnosed with aplastic anemia, but was told that it was likely age related, as I am late 70's. The initial diagnosis was MDS before having a bone marrow aspiration biopsy, so sought a second opinion at a leading cancer clinic, and that diagnosis was aplastic anemia after blood work up and a bone marrow aspiration biopsy. No treatment plan yet, just monitoring the WBC, RBC and platelet levels. I had a total of five Moderna shots, and do wonder whether there is a causation here, but that is all water under the bridge. Need to keep looking forward.

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twallace81 | @twallace81 | Apr 24, 2023
In reply to @debdebkrz "Hi. I’m sorry this happened. Very frustrating that Covid vaccine isn’t looked at seriously as a..." + (show)
@debdebkrz

Hi. I’m sorry this happened. Very frustrating that Covid vaccine isn’t looked at seriously as a cause. There is a group in here that has iron deficiency anemia believed to be from Covid/vaccine. In your case, has it affected your iron/ferritin levels? When you say your blood count was affected, your wbc and plts are also low?

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Hello. Yes I have iron deficiency and am currently on an iron pill along with all my other medicine as well. My wbc , rbc, platelets were low too, Everything tested in a cbc was low. My platelets were the first thing to drop drastically. Everything dropped along with it slowly afterward.

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twallace81 | @twallace81 | Apr 24, 2023
In reply to @bscham "I agree the Covid vaccine has caused a lot of harm but it is hard to..." + (show)
@bscham

I agree the Covid vaccine has caused a lot of harm but it is hard to get Drs. to agree. My husband and I were very healthy until we took the vaccine. A month after my third shot I had a PE in both lungs, a DVT in my leg, and was diagnosed with celiac disease. My husband has been diagnosed with multiple myeloma. We should have taken our chances with getting Covid.

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I am so sorry this has happened to you guys. I am with you. I wish I would have took my chance getting COVID. I know a lot of people have died from COVID and it is an awful disease, it is just terrible things like this happen. Prayers to you guys!

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twallace81 | @twallace81 | Apr 24, 2023
In reply to @seawolf67 "I also was recently diagnosed with aplastic anemia, but was told that it was likely age..." + (show)
@seawolf67

I also was recently diagnosed with aplastic anemia, but was told that it was likely age related, as I am late 70's. The initial diagnosis was MDS before having a bone marrow aspiration biopsy, so sought a second opinion at a leading cancer clinic, and that diagnosis was aplastic anemia after blood work up and a bone marrow aspiration biopsy. No treatment plan yet, just monitoring the WBC, RBC and platelet levels. I had a total of five Moderna shots, and do wonder whether there is a causation here, but that is all water under the bridge. Need to keep looking forward.

Jump to this post

I agree. You will never know how this happened and same with me, I’ll never know either. As much as we would like answers we need to keep looking forward. Thoughts and prayers to you! Keep on going!!!

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