Having aorta valve replacement: I’m scared

Posted by renee11 @renee11, Jan 14, 2022

im having ohs soon im scared to death help me

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@gina5009

Fantastic, I will keep you in my prayers
Gina5009

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I had TAVR done at Cedars-Sinai on May 10. It went very well, released the next day. Took about 2 weeks for the incision to feel better. Started having increased energy right away. So far everything is going well and have a follow-up appointment with my IM Cardiologist on June 12.

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@astaingegerdm

@weezie12
Me too. Going through testing now.

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Fantastic, I will keep you in my prayers
Gina5009

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Had an aorta valve replacement using TAVR a couple of years ago at Mayo. Went very well but they determined afterward that I needed a Pacemaker. Everything works well now and the procedures and recovery were not a problem. If being done at Mayo you are in excellent hands and do not worry.

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@weezie12
Don’t be scared! Have you spoken with the cardiologist performing the procedure?
I’m obviously anxious but it seems to be a safe procedure. That’s why you have all the testing done now so they get all the technical information.
I was also told that there will be 2 cardiologists and a cardio thoracic surgeon.
Also, I know I need it. I can’t live like this.

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I’ve had the heart catheter and T.E.E. and today I’m having a CT scan and we’ll go from there for a surgery date.
I’m terrified!

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@weezie12

This is exactly what I was just diagnosed with.

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@weezie12
Me too. Going through testing now.

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What type of replacement are you having TOVA OR SURGICAL. I am 92 and had a TOVA approximately 2 years ago. It was a "piece of cake". One day in the hospital and then home. They put a catheter in my wrist to do the initial investigation to determine whether I was a good candidate, and then the main catheter went up my leg. No external "chest cracking", no pain (minimal anesthetic). If you do not have the TOVA available where you liive check with Mayo or whatever major hospital is in your area. I was fortunate we have a surgeon who is exceptionally qualified to do these surgeries. His name is Dr. Nandish, Enloe Hospital, Chico, California 95926.
Gina5009

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@renee11

On my heart caths, echos, and other test my dr revealed that my aorta only had 2 cusps and not three...i also have a heart murmur that was not revealed until a year ago .........i am wondering do you still have a murmur after aorta replacement

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This is exactly what I was just diagnosed with.

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@renee11

i have a bad neck and back was in military and got injured im not aware of anything else they did do a ct scan with contrast to look at stomach pelvic and chest. dr said everything looked ok i go for pre-op tomorrow

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Hello @renee11

As your surgery was about a week ago, I've been thinking about you and wondering how you are feeling.

I'm looking forward to hearing from you. Are you home yet? How are you feeling?

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@jenniferhunter

@renee11 Here is something that the psychologist who did clinical hypnosis suggested. Choose a "safe place" for yourself where you can go in your mind to be calm. For me, that was a physical place outside in a mountain meadow, but inside a geodesic dome that was open to the outside elements. Inside it was a wood carving of a dolphin and a tree stump carved into a chair. It is a real place and I had pictures of it that I took with me on my surgery day. You are safe and protected inside your safe place, and remember to breathe slow deep relaxing breaths. I will be sending you my good thoughts on Monday. You may want to take some pictures with you of things you love to have something else to think about on Monday.

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Great ideas, Jennifer!

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