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I have been diagnosed with PMR and can’t take Prednisone.LDN has been suggested – it has been used off label for autoimmune disorders. Has anyone heard of this?
Patience my dear @rwinney,
I hate to remind you that it took me 3 years to get it right. A lot of that was because of the tumultuous nightmare when recreational marijuana became legal. I think you will get it faster than I did. So, thanks for the ratios….can you tell me which one is which THC or CBD? Sort of like this 20:1 THC/CBD tincture. Fussy old teacher aren't I? Good night. Chris
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Both are THC/CBD ratios. This attachment may help. My 2 are marked. Seems like opposite ends of the spectrum to play it safe while putting me on the path comparable to my current pain med strengths. I will increase dose of only the 20:1 THC/CBD by .01 as needed.
I meant .1 ml increases
Hello @vfaye. You may notice I combined your discussions on low dose naltrexone to one discussion and moved it to the autoimmune diseases group where the other PMR discussions are located. @vfaye, here is some additional information on naltrexone and its possible uses, https://www.mayoclinic.org/drugs-supplements/naltrexone-oral-route/before-using/drg-20068408. There are some counter-indications listed for this medication and it does mention it should be prescribed by a medical provider and they can help decide the best regimen moving forward. Is this a medication that you have discussed with your provider?
Hi Justin. Yes, the LDN is being prescribed by a doctor. My primary care physician said he couldn’t prescribe it, and only offered prednisone for relief of the pain. I just started it last night – 1 mg nightly for a week, to be increased. I have also started to take CBD oil, a small amount at night. Wisconsin has not legalized marijuana use, so it is without THC. I have not found anyone to guide me, so I’m following the “go low & slow” direction. Mornings I rub hemp infused balm on my shoulders & use a heating pad (the shoulder pain is the worst). Before Noon I soak in a bath of Epsom salts & baking soda. It seems to help.
Be very careful I buy Tinctures as well of 1:20 Ratio which means it has ; very low THC & high CBD Ratio. I take 2ml. 2 full stoppers in my. Cup of tea I drink my Mint tea w/STEVIA & 2 big full stoppers full in a cup of tea unflavored tincture that is my evening delight. I relax & the pain & torture is gone. Like now. I had a very tough day, woke up very early for me end 8:30AM, & felt pain in every joint looked out the window in NYC saw rain & I knew then that it was going to be a sad miserable day. But I still had 2 Dr's to see & come home afterwards & try to cook dinner. Of course I hit my tiny wedge of cheese & took my 20:1 capsule which contains 5mg of THC: & 0.50mg of CBD. It's brand is Pharma Cannis. I do not get paid to advertise their name or promote it or otherwise. I'm just sharing what works for me. In NYC we are not allowed To get Medical Cannabis in grass or flower form for smoking. Not sure I would want to take it that way. I rather take a capsule or tincture much easier. & no foul smells or tastes. I like the mint flavor vs unflavored Tinctures. I have also noticed some ppl like the 1:1 ratio for ppl who want equal amts of medication that ratio works for their endocanoboid body system. As others who prefer the 1:20low THC/Higher amt of CBD. All I can say is do your homework go online read about these types of medication. Remember there are no such things as miracles but this helps like a big miracle for me. I no longer take a whole bunch of migraine meds or sour stomach or acid indegestion meds or soo many High dose ibuprofen it's dwn to 600mg 2x a day as needed. Most ppl think it is very high dosage but it is not for my body, as I said before we all react differently to this type of medication.
For instance my friend takes 20:1 capsule same brand as what I take but his is extra strength capsule 20:1 regular strength capsule @ 5mg THC/CBD 0.50mg & 20:1 Extra Strength capsule @ 9.5mg THC/0.50mg CBD. & when he tried taking my style he says he feels euphoric feeling. But how can that be if my capsule is abt half the strength of his capsule. Well my friends they have different styles of cannabis. They have Hybrid, Indica & Sativa. Most companies use hybrid but every state & every dispensary is different & therefore the style of medication used in a regular strength happens to be a variation of Hybrid leaning more towards a Sativa blend which happens to give me pain Relief & comfort. Where as the extra Strength capsule is an Indica strain which gives me euphoric type of effects & it numbs as much my chronic pain issue's so I think we must try taking what works better for each of us. So I say take the smallest dosage as possible in the beginning & make changes according to what your own body is telling u to do. I take 1capsule in morning & my CBD Tincture w/a lol bit of THC tincture so I can relax & sleep like a baby as pain free as possible.
I hope you all have a sweet evening. I am so far & having my 2nd cup of plain tea now & I feel good & relaxed now since my 1st cup of tea was @9pm. It's 10:45pm. Sweet Dream's.
Hey, thanks for the wealth of knowledge. Don't know how you keep it all straight. Confusing to me still. I'm just glad to be with a pharmacist that is guiding me and there for every question I have to help me fine tune and advance. I jumped the 20:1 thc/cbd from 0.4 ml to 0.5 ml and that proved to stop me in my tracks….space out, slow, exhausted, heard a bee buzz by my ear. Not cool! So, brought dose back down for now. I understand I takes time and is a process. I'm glad you find your relief and I enjoy reading your posts. Thanks again! Be well.
@msstoppainnagginme, @rwinney, Good morning rays of sunshine. It sounds like you are both becoming dosage strength and strain experts. Quite the process and as soon as you think you have it….your body lets you know that it has now adjusted to your current dose and you need to change it in some way to get back the results you had before.
Regarding the strain issue…Sativa, Indica and Hybrid, many of the manufacturers are not making strain-specific products anymore for medical cannabis. I started there 5 years ago because all the products were strain specific. I usually chose Indica if available or Hybrid. I was afraid of Sativa. You can check out Care By Design as a pretty good discussion of strains.
Other products like topicals were made by someone in their backyard…..just like you are doing Rachel to make your topicals. They were available in small plastic containers like you get with a salad at the diner. There were no labels or instructions. You just had to trust the maker. I think a small one was $10 and the larger one was $40. There was an attempt at product consistency but who knows?
Now with regulations that come with legalization, the products are safer and more effective.
Have a great holiday week…….go slowly…..be safe and secure……Chris
Hi Chris, I read on some stuff & I'm soo sad for ur issues dear. I hope & wish u well with all.
Now with this Website it's informative but most of it does not work that way in NYC. They do tell you what strain it is & Ratios & how it is supposed to work. But that's where we all differ. I have severe allergies w/Neuropathy medications but wen I try high dose Sativa blend THC/liquid it releases my nerve pain & just makes me feel happy & relaxed whereas most ppl take Indica to feel that way. With medical cannabis I have found that ur own body is your best guide. Just try what makes your body feel better. When I share my information I try to explain what happens to your body. If you feel euphoria/that dizzy or room spinning means you either took way too much or that strain is not for you. It happens each & every time I have tried a higher dose of too much CBD or a Indica strain of THC. My body reacts differently than some other ppl do from taking the same combination of THC/CBD. But different style of cannabis blends. In NYC most of these laws do not apply to us. & most dispensaries are told that they must divulge that information to their customers for the fact that it makes a huge impact on one's experience & outcome of such medication outcomes. Wouldn't you want to know what strain it is & how it should impact your body & mind.
I'm just saying how it is in NYC from what I know so far almost 4yrs now.
I'm not saying that they may do whatever they wish but in NYC it is not legal take in public without proper license & there is no smoking of this product. Some ppl may choose to vape/the use of e-cigarette form. But not to my liking. & each pkg is marked Hybrid, Indica or Sativa. As far as what is going to happen in the future I do not know. But most companies try to tell u what type it is so it can help you better. I wish you all a good nite & happy mellow holidays.
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