1. < MAC & Bronchiectasis

Anyone using Breztri inhaler

Posted by Stella Tucson @fraytv, Apr 26, 2023

Is anyone with bronchiectasis using this inhaler & had good results? I have not used it before & now my dr wants me to try it. I have been using Breo for 8 years & have always been told by different pulmonologist how good it is. The pulmonologist I am now seeing wants me to use Anoro, he says Breo is not good for the lungs due to the steroids. My primary dr & another pulmonologist that I saw regarding the pseudomonas while in hospital now want me to try Breztri. I also nebulize with albuterol twice a day & 7% saline once a day. Would appreciate any feedback good or bad on Breztri. Thank you!

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harrynsc | @harrynsc | Apr 27, 2023

Search for "MAC ICS lung" There are papers that say there is a higher risk of MAC if
you use an ICS. Anoro does not have an ICS. I was on Trelegy, but switched to Anoro recently.
I do abuterol and 7% saline twice a day.
I like the idea of using mechanical means to keep the lungs clear.
Harry

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1 reply
leilam | @leilam | Apr 28, 2023

I have MAC and Bronchiectasis. I was misdiagnosed and treated for asthma for years with all the medication for asthma,steroid inhalers and given prednisone and antibiotic frequently. When I was concerned I wasn't getting any better I changed Drs. He weaned me off all the inhalers. Ordered Brestri, neb with 3% saline and levabuterol. He ordered sputum culture and when they came back positive for MAC he sent me to a ID. We have decided not to treat Mac because of my age and because I am not sick. I have not felt this good in years

REPLY
1 reply
Stella Tucson | @fraytv | Apr 28, 2023
In reply to @leilam "I have MAC and Bronchiectasis. I was misdiagnosed and treated for asthma for years with all..." + (show)
@leilam

I have MAC and Bronchiectasis. I was misdiagnosed and treated for asthma for years with all the medication for asthma,steroid inhalers and given prednisone and antibiotic frequently. When I was concerned I wasn't getting any better I changed Drs. He weaned me off all the inhalers. Ordered Brestri, neb with 3% saline and levabuterol. He ordered sputum culture and when they came back positive for MAC he sent me to a ID. We have decided not to treat Mac because of my age and because I am not sick. I have not felt this good in years

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Sounds like what I went through for years, I was misdiagnosed. Hope you continue to feel good. Thanks for responding!

REPLY
1 reply
Stella Tucson | @fraytv | Apr 28, 2023
In reply to @harrynsc "Search for "MAC ICS lung" There are papers that say there is a higher risk of..." + (show)
@harrynsc

Search for "MAC ICS lung" There are papers that say there is a higher risk of MAC if
you use an ICS. Anoro does not have an ICS. I was on Trelegy, but switched to Anoro recently.
I do abuterol and 7% saline twice a day.
I like the idea of using mechanical means to keep the lungs clear.
Harry

Jump to this post

Thank you!

REPLY
leilam | @leilam | Apr 29, 2023
In reply to @fraytv "Sounds like what I went through for years, I was misdiagnosed. Hope you continue to feel..." + (show)
@fraytv

Sounds like what I went through for years, I was misdiagnosed. Hope you continue to feel good. Thanks for responding!

Jump to this post

Thank you. Good health to you also

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