1. < Kidney & Bladder

Anyone take a PPI & your Kidney function declined? Worried!

Posted by sallylynn @sallylynn, Jun 3 9:51am

Hi. I have a question. I will try to abridge this.
12/2/2023. Was prescribed Pantoprazole by PCP foe erosive esophagitis/GERD. I was EXTREMELY hesitant to take it since I did a deep dive of research on PPI's
I ended up NOT taking at first & just took OTC Pepcid A.C.
I was not getting relief so I started taking 1 Pantoprazole 20mg a day.
Ar times I would take 1 Pantoprazole A.M. 1 Famotidine 20mg P.M.
For months (5) I would go days, or a week not taking any medication. On and off basically.
Less than 10 times in several months, I took smallest amount of Gaviscon at bedtime.
My ENT doctor prescribed Sucralfate suspension
This medication is to coat stomache lining & esophagus fro "healing".
I stopped taking it after day 20. This drug has aluminum in it and Silica.
*COMPARISON OF BASIC METABOLIC PANELS:
12/26/2023- CREATININE 1.08/ eGFR 61.
05/22/2024- CREATININE 1.23/ eGFR 49.
* A doctor wrote a message on my 05/22/20224 BMP results stating my results ore OK, your creatinine is a bit higher, everything else is good.No mention on my eGFR. Told me to drink some more water to help my creatinine.
* On 05/07/2024 I wrote a My Chart message to my PCP that starting on 05/05/2024 my feet and hands are tingling & through the night. My feet are aching & tingling but my hands get tingle zaps.Let's call it neuropathy. It comes & goes. Not constant. Now, why I am concerned is the Kidney foundation on the Web does say kidney problems can cause hands and feet to "Tingle". I reached out to my Clinic, spoke to a nurse with my concerns, and the jest of it is, I might as well have been speaking to a painting on a wall. I feel justified to be worried hence the drop in my eGFR and rise in my creatinine but the doctors are not? I am terrified by me taking pantoprazole has permanently damaged my kidneys, and yes, it does. If a PPI causes CKD, it is permanent. AKI from PPI's IS reversible. Anyone out there with a similar situation? I see my "New" PCP on 06/10/2024 and another BMP lab on 06/17/2024. Any other lab suggestions? Thank you and God bless.

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Mentor
Ginger, Volunteer Mentor | @gingerw | Jun 7 5:47pm
In reply to @sallylynn "Hello Ginger. May I ask please if you ever had the Cystatin C test? I have..." + (show)
@sallylynn

Hello Ginger. May I ask please if you ever had the Cystatin C test? I have been reading about it. I'd be a liar if I said I wasn't scared. IF I didn't have this intermittent achy/ neuropathy in my feet and hands I probably wouldn't be as scared. I feel a lot anger and fear right now Ginger. I am angry because all for I know my eGFR has been hovering in the 40's for months and that is why I possibly have symptoms now! I was denied a blood test to check how my kidneys were functioning! Actually ENT sent a referral to her for a BMP and no response & then my gastrologist as well, which was ignored! I could have gotten off my meds after a couple months being on them! Yes, I am livid. Very livid! And yes, the Administration at my Clinic received a complaint from me. I want **** reprimanded. ~ My new PCP right off the bat was pro active, however, Administration is now involved in my situation so they may have had a say about the nephrologist and that is why I had a swift referral, but I pray my new PCP will be on top of the game. I am just...devastated. 🙁

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@sallylynn No, I never have had a Cystatin C test for eGFR. My insurance will not cover it. Being a kidney disease patient for over 20 years, my medical team and I found the standard test to be sufficient for my situation, without the added cost.
Ginger

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