Anyone out there have an increase in parathyroid hormone?

Hello, I am 59 1/2 and have had parathyroid issues pre (took paracalcitrol) and post kidney transplant. (taking Cinacalcet) -I manage my calcium intake and Dr.’s keep a close eye on my bloodwork. So do I. It’s a balance with meds because one thing impacts another. Anyway, I have had kidney disease since I was 29. Truly a journey! Never on dialysis and I received a kidney from my son 9 months ago. Praise be to God! Prayers to you for patience and healing.

Thanks for your prayers and your reply. I’m just concerned that, with all the other medications I’m taking for CKD, that there might be some negative interaction.

Your Dr. can review your meds and make recommendations or refer you to someone who can review your meds and diet so you can make an informed decision, like a clinical nutritionist/dietician. Don’t hesitate to seek professional guidance, especially around your calcium intake! I did and so far things are working out well.

I have elevated parathyroid hormone but no kidney disease. Calcium normal, being monitored by endocrinologist for any changes. So far no issues

I had stage 5 with very high PTH. My nephrologist sent me to a surgeon who suggested removal. Talked to my endo (type 2) and she referred me to someone in her office who is a specialist on calcium absorption and heads Duke’s bone density clinic. He told me that there is more long-term success with surgery then drugs, so off they came. Surgeon took of some, then blood tests, then some more. Took about 4 hours. Inserted a small portion in my left forearm. Now taking Tums for calcium.
BTW, had a transplant last June.

I had undetected parathyroid disease for as far as I can trace at least 5-6 years. The Dr failed to recognize the hallmark symptoms. Was not discovered until he left and a female physician took over my case and picked up the lab discrepancies within 10 minutes. Long story short, had a parathyroidectomy done at Norman Clinic in Tampa - the only place to go! Now I am left with severe osteoporosis in my right hip of which I will not take medication for, kidney stones, CKD at stage 3 but am very stable. I take no new medication without checking with the nephrologist and my renal panel numbers are stable. Duke, by the way has got to be the mecca for disease management. I had Zyphyr valves for COPD inserted there. The are fantastic and would return if I needed any additional medical attention that I feel the small southern town I live in is not equipped to manage!

Thank you for your response.

I don’t know much about parathyroid, the levels or ailments associated with it. I understand it is part of the endocrine system and that’s about it. I’ve had diabetes for 50+ years, stage 3 CKD and osteoporosis (plus some other stuff). My endocrinologist and nephrologist are both in the same healthcare system. They share my lab work results, monitor nearly everything (as far as I can tell) and recommend adjustments as needed. Nephrologist has changed my calcium supplement dosage. Endocrinologist does bone density tests and has prescribed Prolia injections every 6 months. I’ve been told that everything is stable. Unfortunately I had an insurance change effective 1/1/2026 and if I could just get those people to get with the program that I and my providers have established over the past 20 - 21 years!

@kndaustin71
I was pleased with my surgery of a parathyroid at Norman Clinic in Tampa. It was arranged well and I received information about overnight stay in hotel because I lived elsewhere.

@mayybee The Norman Center was extremely impressive. The surgeon you did my parathyroidectormy even called me once I go home to make follow--up suggestions and see how I was doing. What other place can you have a procedure done and leave the surgical center with the cell phone numbers of all 8 physicians at the center. I was very impressed and pleased with every aspect of care with them. Wish they had other centers that were similar in all areas of health care! Dream On!