Anyone out there diagnosed with Pudendal Neuralgia?

I had a failed spine surgery in 2013. L3/4. Struggled walking, etc. Then in 2019 started forget problems in pelvic area. Also walking became more difficult, now having problems at L4/5 as well. Yes, I think it has to do with failed back surgery.
The whole situation is hopeless for me. Had 2 nerve block without success - to the contrary, made it worse. Not just for the 2 weeks I was told about, but now more painful than before. No options by Mayo offered besides Gabapentin plus Valium, rehab (which I do) and going for 3 weeks to their pain rehabilitation program. Daily from 8am until 5pm. With the symptoms I have, that’s something I can’t do. Even more stress!!
I am in an impossible situation.

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That would unfortunately be me.
I've had this problem for over 25 years. My pain is in the left tailbone and anus area. (How lovely).
Only relief has been Clozepam .5mg x2 per day along with Effexor which is an anti depressant. Her to help or talk. I'm back in this dreaded horse because of the opiod crisis and the doctor wanted me to get off Clozepam which I have been fir two weeks. I'm now just like it was day 1 with pain. I'm going back to Doctor to get back on them.

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My pain started after contracting a bad virus in 2018. Whereas most everyone at work got a horrid respiratory infection, I slept for 3 days and was very weak. My body was attacked. 5 days later, this pain started in the rectum. Being a type A personality, I went to work with sitting pain. I was an accountant with a team of professionals, and my commute was about an hour each way. I used over the counter meds, ice and heat to get through for 8 months. The stress of working with this pain brought on shingles that erupted off the left side of my tailbone. Dr. put me on gabapentin and Hydrocodone/Acetaminophen which helped, but did not take all the pain away. Went back to work after a month (using up vacation time), and the whole deal of going back to sitting was stressful, painful and depressing. I stopped the painkiller and gabapentin as I had to drive, plus my job was cerebral - budget, year-end, audit and taxes. I had horrible stabbing, burning and spasms in the rectum. I went out on disability (it was so bad, I couldn’t do another day), and went to a pelvic therapist. She could break a muscle spasm, and dry- needle outside trigger points, but the pain would always come back. More shingles occurred; this time down toward the left labia. Then saw a new gynecologist, and she took 3 biopsies from the pelvic floor area. No cancer. Then I developed a strange skin disorder in the pelvic region which required clobetasol. My doctor put me back on painkillers, gabapentin plus duloxetine as I had post herpetic neuralgia. My immune system was shot. So now my whole left pelvic floor was in pain, even when laying down. I went through a series of cat scans, MRIs and therapy, but to no avail. I also had 4 image guided shots on my spine; no relief. I had always been a healthy, happy and hardworking person, but when the flares hit, I would pray that God take me. I’m not suicidal, and I would not wish this pain on anyone, but there were times when I thought if only the health providers could feel this for one day, there would be more understanding; maybe more research.
4 weeks ago, I had a dorsal root ganglion implant procedure. I had a successful trial, meaning my pain levels improved considerably. Right now, I’m going through that period of working with a representative to help me get the correct setting to alleviate the pain. It takes time and patience. I’m not there yet, but I have hope. Thank you.

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My pain started after contracting a bad virus in 2018. Whereas most everyone at work got a horrid respiratory infection, I slept for 3 days and was very weak. My body was attacked. 5 days later, this pain started in the rectum. Being a type A personality, I went to work with sitting pain. I was an accountant with a team of professionals, and my commute was about an hour each way. I used over the counter meds, ice and heat to get through for 8 months. The stress of working with this pain brought on shingles that erupted off the left side of my tailbone. Dr. put me on gabapentin and Hydrocodone/Acetaminophen which helped, but did not take all the pain away. Went back to work after a month (using up vacation time), and the whole deal of going back to sitting was stressful, painful and depressing. I stopped the painkiller and gabapentin as I had to drive, plus my job was cerebral - budget, year-end, audit and taxes. I had horrible stabbing, burning and spasms in the rectum. I went out on disability (it was so bad, I couldn’t do another day), and went to a pelvic therapist. She could break a muscle spasm, and dry- needle outside trigger points, but the pain would always come back. More shingles occurred; this time down toward the left labia. Then saw a new gynecologist, and she took 3 biopsies from the pelvic floor area. No cancer. Then I developed a strange skin disorder in the pelvic region which required clobetasol. My doctor put me back on painkillers, gabapentin plus duloxetine as I had post herpetic neuralgia. My immune system was shot. So now my whole left pelvic floor was in pain, even when laying down. I went through a series of cat scans, MRIs and therapy, but to no avail. I also had 4 image guided shots on my spine; no relief. I had always been a healthy, happy and hardworking person, but when the flares hit, I would pray that God take me. I’m not suicidal, and I would not wish this pain on anyone, but there were times when I thought if only the health providers could feel this for one day, there would be more understanding; maybe more research.
4 weeks ago, I had a dorsal root ganglion implant procedure. I had a successful trial, meaning my pain levels improved considerably. Right now, I’m going through that period of working with a representative to help me get the correct setting to alleviate the pain. It takes time and patience. I’m not there yet, but I have hope. Thank you.

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