Anyone on Pluvicto? Looking for a support team

Posted by eugenelapietra1 @eugenelapietra1, Dec 19, 2023

Looking for support team going through Pluvicto.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

@michaelbryan6998

Many thanks. Ordered from Amazon. Have dry mouth now from ADT. Blessings

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Cancer patients use them Put in mouth overnight and one sticks to side of gum and dissolves slowly all night Do not suck or chew Let them last all night

I also spray Biotene from I get at drug store or any Walmart I get big bottle and reload small spay bottles at bedside and in car

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@melcanada

Cancer patients use them Put in mouth overnight and one sticks to side of gum and dissolves slowly all night Do not suck or chew Let them last all night

I also spray Biotene from I get at drug store or any Walmart I get big bottle and reload small spay bottles at bedside and in car

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Thanks. Helpful

Michael

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@smc24

I've been through Pluvicto and am in the process of repeating the treatments. The guidelines say stay 3 feet or more away for the first 3 days, for extended periods of time. My recommendation is to have him sit in the back on the passenger side, opposite the driver . Moisture, when exhaled will be radioactive (as is urine, sweat, etc). Keep the heater/air conditioning FAN on medium or higher. This will bring in the most outside air, maintaing positive pressure inside the car, which forces the air out through the louvers in the back (trunk). DO NOT use the recirculation setting. You want all fresh outside air. Depending on the weather, a partially open window would be helpful to get rid of the contaminated air.
While in the hospital, watch the medical staff. It's not as scary as you might think, but definitely follow the guidelines.

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@smc24 Inquiring if there’s any chance you are on Medicare & they approved another 6 repeating treatments

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Sort of. I was one of the original Novartis Pharmaceutical clinical trial patients in 2021-22. Costs were paid by Novartis and the University of Chicago. When the cancer started to advance again, in early 2024, my medical team at Simon Cancer Center in Indianapolis applied to Medicare and my supplemental insurer, Aetna for coverage. They agreed. The view it as their first (and only) coverage. I have completed 4 of the repeat 6 treatments. In summary, Medicare will only cover Pluvicto for one round of the approved 6 treatments. My case is extremely unique.

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