Anyone Living with MPA (Microscopic Polyangiitis) Vasculitis?
Last year following a case of COVID-19 I was hospitalized due to hemorrhaging in the lungs. I was placed in a drug induced coma because multiple organs were failing. I spent 2 weeks in ICU on a ventilator until I was stabilized. A biopsy of my kidneys verfied my diagnosis of MPA. After 7 months of rehab, I was able to return to work, but my life hasn't been the same. Within this year following my initial diagnosis of MPA, I've also been diagnosed with diabetes, osteoarthritis, and fibromyalgia. I'm still trying to adjust to the constant fatigue, shortness of breath, painful joints and general pain in my shoulders, down the backs of my legs, and swelling in my legs, feet & ankles. I have Rituxan infusions every 4 months to suppress the ANCA vasulits which strips any immune system I may have, so my question is will I have to avoid crowds for the rest of my life in order to try and avoid an infection? My granddaughter has a dance recital this month and I would love to attend, but I'm afraid I may get sick as a result. Any insight on how to live a somewhat normal life would be much appreciated.