Anyone here with Anti-TIF-1γ Antibody-Positive Dermatomyositis?

I've tried multiple biologics but never been able to get off steroids. In 2022/23, I had 4 bouts of back-to-back Covid infections (despite being fully vaccinated and boosted!), which resulted in blood clots, emphysema, lung nodules and COPD. I was never really the same. Subsequently, I noticed that every time we tried to wean from the steroid to see if the biologic was working, I had difficulty walking - I shuffled like an old lady, developed tremors, had difficulty getting up out of a chair, and couldn't climb stairs. This year my doctor referred me to a neurologist and my EMG was slightly abnormal, but really nothing diagnostic. We tried switching to Remicade in August and suddenly my legs started to drag and the tremors got worse. They paused the infusions, thinking that maybe it had triggered MS. I had 4 MRI's, genetic testing, labs galore . . . and shockingly a panel that my rheumatologist had run many, many times over the last year suddenly came back positive for dermatomyositis. It was run again to see if it was a false-positive, but it returned again positive. I have the V-sign rash on my chest which I guess is why she kept running it, but it seems between the Methotrexate, steroid and whatever biologic du jour I was on - it was suppressing the antibodies.

I haven't had the muscle biopsy yet. Has anyone gone through it? Was it an easy recovery? I have a referral for a neurosurgeon, but haven't met with one yet. I tend to heal slowly because my immune system sucks and all the immune suppression, so I'm concerned I won't be back on my feet for the holidays with my kids coming home ( I know it may seem silly, but I only see my youngest a couple of times a year so it's important to me that I'm up and around).

Also - from what the neurologist told me on Friday, it's connected to cancer. My mother had thyroid and adrenal cancer, my sister had bladder cancer in her 20's and then colon cancer in her 50's. My grandmother never smoked but died of lung cancer, so it's in the women on my mother's side. The neurologist put in for multiple CT scans, but I'm wondering if with my family medical history, it would be out of line to ask for a PET scan since I'm 57 and I read the older you are, the higher the risk.

In one way, I'm relieved - I feel like we've been throwing darts in the dark at a moving target. Lots of missing, which over time has worn on my soul. So a diagnosis at least, hopefully, means new treatment. At the same time, the more I read, the scarier this diagnosis sounds. This last week has been a bit overwhelming. If anyone has personal experience, I would be so grateful for input. It's uncommon and I don't know anyone else with this condition.
Thank you.