Hello ! I am new to the site but found your post in an internet search . I too have the tif-1 antibody . I was diagnosed with CLL in 2018 and completed treatment in 2024. A few months later developed full blown dermatomyositis with full body rash and muscle weakness . I am currently taking Plaquenil and on IVIG infusions monthly . I have had multiple scans and blood tests for solid tumors which are much more common in this antibody group, but scans and markers for different cancers so far have come back negative thankfully . Dermatomyositis is uncommon in lymphoma type cancers but does happen so it may be related to that. Not sure if the disease was hiding inside me and waiting to come out or if my immune suppressant medications used to treat the CLL had some effect and then when I went off of them the disease manifested ? My practitioners don’t have any answers unfortunately as it is pretty rare . I also started HrT as I am 54 and post menopausal , 2 weeks before symptoms started so I do believe that this hormone therapy activated something in my immune system as well . From what I have read this is a complex disease process and a perfect storm of several things comes together to trigger it . I wish they knew more but am grateful that there are more treatment options than there used to be . I am mostly back to being able to do everything physically I could do before . Back to playing pickleball and going to gym and hiking and domestic things . In the worst of my early days before the Plaquenil I couldn’t even shower myself or walk properly or lift anything even my arms to put medicated cream on my rashes . So I am grateful for where I am now . The scalp is honestly still very difficult as I had significant rashes in the scalp and hair loss as well as burning and constant itching of the scalp. It was really debilitating . My hair is now coming back slowly and the rash is improving with the ivig . I see your post is from several months ago . I hope you are seeing success with your treatments.