Anyone here have Fuch's Dystrophy?

I'm sorry, I don't know the answer to that question. I have hearing problems, so I don't always hear what's being said. At the post-op appointment Dr. Gorovoy expressed his happiness with how well the procedure went and he mentioned how wonderful that I won't have steroid drops or the risk of rejection. I'm sorry, I sound like I was not very actively involved in the process. Usually I am very involved. I wanted DSO because of what I had read about the procedure, so I was just happy Dr. Gorovoy was recommending it.
I'm sorry I can't be more specific.

I have had Fuchs for about three years, and I was just diagnosed last month with Macular. My left eye was 20/100 with glasses, right was 20/40. I didn't realize my left eye was that bad.

No worries, I was just curious. Feeling confident in your doctor is key. How wonderful Dr. Gorovoy recommended DSO. Having had transplants at a younger age, I'm always interested in learning about further advancements should I need to address Fuchs in the future. Will you continue to keep the community up to date on your progress?

Absolutely!

I have Fuchs dystrophy & am a candidate for DMEK in my left eye where I also have a cataract. I live in Canada & the Fuchs expert there was anxious to slit open both my eyes early this year…what an egomaniacal idiot!

I already know he gets paid by procedures so the more he cuts the more $$$ he makes. Currently I am using eye drops to remove the extreme water that collects in my eyes, especially in the morning, since overnight these defective cells collect way too much water.

I also have dry eyes. For that I use hylo gel. Hope this helps! Gratefully Marianne

I have Fuchs Dystrophy, cataracts, macular degeneration and Sjogren. I see a cornea specialist for the Fuchs, and cataracts and a retinal specialist for the MD.
Does the hylo gel work well for you. Is it prescription? I have received no direction for the Fuchs Dystrophy.

Cataract surgery was done on my left eye a month ago. Fuchs Endothelial Dystrophy was only diagnosed 5 days later. Normally they do the other eye a couple of weeks later but I'm told I have to wait about 5 months. I have an eye test soon, struggling with left eye vision problems I didn't have before. Left eye lens was corrected for distance vision but colours are darker, clarity seems compromised and I may end up needing a corneal transplant. Driving is now a health hazard, and I have to cover my left eye when wearing my reading glasses. I never believed I had Cataracts. If only the corneal dystrophy had been picked up before the surgery! How are you managing to cope with your eyesight now? Did you get a corneal transplant? I hope everything has worked out for you now.

I have Fuch's Dystrophy. I found the Fuch's Friends group invaluable. Here is a link to their website:

Love and best wishes to you! Do not worry, there are many new treatments today that weren't available 10 years ago.

Denise Scheppe

Thanks so much Denise for your support and the link 🙂 Love and all the best to you. Shedea

Hi, so good to read the information. I just got diagnosed in 11/23 at 73. I noticed I have blurring of vision at night after using my eyes all day at work. My eye exam showed there was no changes needed in my glasses. I use the Muro drops of a day and generally before I go to bed. I hate the ointment but I suppose should use it more often at night. My eye doctor didn’t tell me
Much about it just that I have it and one day might need a corneal transplant. I think I may have some dry eye as one eye feels dry kinda stuck when I wake in the morning. I did notice the other morning when I got up the lettering on my tshirt looked smudged downward from the letters. Anyone doing anything different for treatment.