Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016

Anyone here dealing with peripheral neuropathy?

@dancermurphy

Thanks I will try to find it !!

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Hi Dancer Murphy,

I really wish you the very best and hope you find some pain relief and have a Blessed day and enjoy your Breath and Life. MicTim

Liked by dancermurphy

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@ jjwest @mictim
Just a word of caution… both a deficit and excess of B6 can (ironically) cause neuropathy or worsen it. Make sure that you doctor is frequently testing your blood level for this vitamin, and remember always that such supplements are not regulated and often have more or less of the active ingredients claimed.

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@elizm

@ jjwest @mictim
Just a word of caution… both a deficit and excess of B6 can (ironically) cause neuropathy or worsen it. Make sure that you doctor is frequently testing your blood level for this vitamin, and remember always that such supplements are not regulated and often have more or less of the active ingredients claimed.

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That was the first thing my neurosurgeon did.
Ronnie

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In reply to @paityn8 "I am" + (show)
@paityn8

Hello, @paityn8 – welcome to Mayo Clinic Connect. I'm afraid we did not get your entire message. Do you have peripheral neuropathy?

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I do have neuropathy in both legs and drop foot in both from POEMS

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@grandmar

Thank you so much for your post, @bburleson1!
I live in Florida and I am concerned about it making me warmer than I already am.
But now, you have given me the desire and confidence to use the brace.
You are so right about being independent and being able to drive.
I want that FREEDOM!!!!
I wear shorts almost all year round so I am sure it will be noticed, but I don't care!
I am not real big on what people think.
My philosophy is if you don't like it, don't look.
One question, do you wear one or two??

Thanks again, I really appreciate your post!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

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I wear 2. They are lightweight..I hated them at first but I think my legs were worse and I couldn't navigate my feet into the shoes easily..It seemed like it took forever to get them on. Now .. . I just pop them on in the morning (routine) and I'm up and around..It's almost second nature, and what a relief to be able to go outside and garden, walk, go to the gym, drive, and I haven't fallen in such a long time..I haven't mastered wearing shorts, but maybe I will this summer, who cares… we care enough about ourself to be our best and if the braces make us better, well then, solution solved..

Liked by grandmaR

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@lisalucier

Hello, @paityn8 – welcome to Mayo Clinic Connect. I'm afraid we did not get your entire message. Do you have peripheral neuropathy?

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Lisa, yes, PN in both feet equally caused by a fall many years ago.

Liked by Lisa Lucier

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I also get PN due to a fall, and landed on both feet on rocks, years ago.

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@mictim

Hi Dancer Murphy,

I really wish you the very best and hope you find some pain relief and have a Blessed day and enjoy your Breath and Life. MicTim

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Where did you find neuro freeze ? Looked on amazon but they don’t have .

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@bburleson1

I wear 2. They are lightweight..I hated them at first but I think my legs were worse and I couldn't navigate my feet into the shoes easily..It seemed like it took forever to get them on. Now .. . I just pop them on in the morning (routine) and I'm up and around..It's almost second nature, and what a relief to be able to go outside and garden, walk, go to the gym, drive, and I haven't fallen in such a long time..I haven't mastered wearing shorts, but maybe I will this summer, who cares… we care enough about ourself to be our best and if the braces make us better, well then, solution solved..

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Thank you for sharing.
The more I read about wearing braces, the more excited I am to get them.
I cannot wait for my FREEDOM.
Funny, I was at the medical clinic yesterday.
There was a man with his toddler child.
He was running after the little guy.
Then, I actually took a look.
Guess what?
They dad was wearing a leg brace that looks similar to the one I am getting.

Have a great weekend!
Ronnie (GRANDMAr)

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@grandmar

Thank you for sharing.
The more I read about wearing braces, the more excited I am to get them.
I cannot wait for my FREEDOM.
Funny, I was at the medical clinic yesterday.
There was a man with his toddler child.
He was running after the little guy.
Then, I actually took a look.
Guess what?
They dad was wearing a leg brace that looks similar to the one I am getting.

Have a great weekend!
Ronnie (GRANDMAr)

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I am interested in the braces , but they have never been mentioned. Do you have a doctors pres. or is there a special place you can go to?

Liked by grandmaR

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@peggyn

I am interested in the braces , but they have never been mentioned. Do you have a doctors pres. or is there a special place you can go to?

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The foot doctor sent over a script to the specialist. It gave a diagnosis and what she wants the brace to accomplish.

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I'm following this thread with interest. My toes started dropping months ago. So far, I have been training my leg muscles to pick up my feet higher but I know that's temporary and I will need something that holds my toes up. I'm glad to know that there are braces available and that insurance companies pay for them. Do keep us informed about how your braces work out for you … Peggy

Liked by grandmaR

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@dancermurphy

Where did you find neuro freeze ? Looked on amazon but they don’t have .

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DancerMurphy, I looked on Amazon and it was not there like before. It really works for my PN at least for me and allows me to get some sleep. the bottle says Michaels Amazing Botanicals on it. I use the "Cooling" one and thereis one called Heating I have sometimes used it in the winter when my feet get really cold. Isaw it an a website. MicTim

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@mictim

DancerMurphy, I looked on Amazon and it was not there like before. It really works for my PN at least for me and allows me to get some sleep. the bottle says Michaels Amazing Botanicals on it. I use the "Cooling" one and thereis one called Heating I have sometimes used it in the winter when my feet get really cold. Isaw it an a website. MicTim

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Hello I am new to this group but feel so grateful to find you burning friends,my PN has no relief I have been searching for over 12 yrs,shoes,medicine,I am starting the Ketamine infusions this week,once a week for a month.

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