Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016

Anyone here dealing with peripheral neuropathy?

@ujeeniack

TRY NEWER FORM OF GABAPENTIN. ALSO,B12.

GET EMG!

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Not sure what working with kids has to do with using medicinal cannabis? Many children use it for seizure disorders and various other disorders.

Nancy Shermoen~

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@ujeeniack

TRY NEWER FORM OF GABAPENTIN. ALSO,B12.

GET EMG!

Jump to this post

No medical marijuana is a mixture of CBD and THC. I believe CBD is hemp oil and legal to buy online everywhere. It is the THC  part that is only legal in certain states but is the part that is most effective. Mayo Clinic has a good article on their guidelines which you may want to check out. One of the moderators on this connection site emailed it to me.Nancy Shermoen~

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@ujeeniack

TRY NEWER FORM OF GABAPENTIN. ALSO,B12.

GET EMG!

Jump to this post

P.S. I do order the oil from SOL CBD.com and I am not sure if it helps or not. Some people swear by it but I cannot say it does much for me. However when I was in Colorado I went to a dispensary and bought a balm that is half CBD and half THC each 50mg and I LOVE it. Also got relief from an edible combination of CBD and THC.Nancy Shermoen~

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@ujeeniack

TRY NEWER FORM OF GABAPENTIN. ALSO,B12.

GET EMG!

Jump to this post

Yes I have read the difference between CBD + THC but i will also go check out Mayo clinic guidelines. Info is power!
I have read about kids using it to control siezures. But i have to admit that where i work i have a very difficult time imagening the principal or my students parents accepting theyr teacher goes out 4 a smoke, wether it be “medical” or not, during recess…although cookies or muffins might be an interesting option. I guess i’ll need more leagal info also for canada. I love what i do and I want to continu doing it.

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@ujeeniack

TRY NEWER FORM OF GABAPENTIN. ALSO,B12.

GET EMG!

Jump to this post

I would never smoke it. I use a balm I rub on my skin wherever the pain presents and I loved the little edible that tastes like a tootsie roll. I saw on Facebook where a skin patch is coming soon. I would much rather take a plant from God then anything big pharma offers.Nancy Shermoen~

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Well, I do have a lot to learn! I only know of 1 person who uses mm & he smokes its. A rub where it hurts…sounds good to me. Im having a lot to deal with & a lot of learning to do! Its like my body exploded with pains a few wks back. Im in the process of eliminating meds…and then?? Thanks 4 the info.

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@fleure

Well, I do have a lot to learn! I only know of 1 person who uses mm & he smokes its. A rub where it hurts…sounds good to me. Im having a lot to deal with & a lot of learning to do! Its like my body exploded with pains a few wks back. Im in the process of eliminating meds…and then?? Thanks 4 the info.

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Hello @fleure, It’s good to be proactive and do your own research. I started a supplement protocol for my SFPN which I only have numbness no pain. I’m fortunate to not have to deal with meds for pain for my SFPN. I have had a couple of bouts of PMR which I’ve had to take prednisone but I am currently titrating off it now for the second time. First bout of PMR was in 2007 and then took the nasty prednisone for about 2+ years and it went into remission until this past March. I had a post in a previous conversation where there is a little more info on how I started the supplements if you want to read… https://connect.mayoclinic.org/reply/reply-8cf9ea91c0d889d/. Good luck!

Liked by Fleure

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@fleure

Well, I do have a lot to learn! I only know of 1 person who uses mm & he smokes its. A rub where it hurts…sounds good to me. Im having a lot to deal with & a lot of learning to do! Its like my body exploded with pains a few wks back. Im in the process of eliminating meds…and then?? Thanks 4 the info.

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Does anyone have burning pain and numbness in one foot and ankle that the pain is amplified when staring or walking?  I know there is something wrong in my left foot but a foot surgeon sees busitis and metatarsal pad deterioration but no solutions. I have orthodics, gel pads, and take Gabapentin and compound creams that helps reduce the pain. If anyone has a similar problem, please let me know.

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@fleure

Well, I do have a lot to learn! I only know of 1 person who uses mm & he smokes its. A rub where it hurts…sounds good to me. Im having a lot to deal with & a lot of learning to do! Its like my body exploded with pains a few wks back. Im in the process of eliminating meds…and then?? Thanks 4 the info.

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Hello Robert (@robertlclark), are you able to get a second opinion from another specialist? Hopefully someone here has similar symptoms and can answer your question.

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@fleure

Well, I do have a lot to learn! I only know of 1 person who uses mm & he smokes its. A rub where it hurts…sounds good to me. Im having a lot to deal with & a lot of learning to do! Its like my body exploded with pains a few wks back. Im in the process of eliminating meds…and then?? Thanks 4 the info.

Jump to this post

Hi John, I’ve seen many specialists but none have been able to find the specific problem. Most tell me that I will have to live with the pain

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@fleure

Well, I do have a lot to learn! I only know of 1 person who uses mm & he smokes its. A rub where it hurts…sounds good to me. Im having a lot to deal with & a lot of learning to do! Its like my body exploded with pains a few wks back. Im in the process of eliminating meds…and then?? Thanks 4 the info.

Jump to this post

Have you seen a neurologist to see if there is nerve damage? The symptoms kind of sound like small fiber peripheral neuropathy which I have but in both legs and feet. I’ve never had the pain but just numbness. It started out in the toes for me and worked it’s way up into the calves below the knees. Have you seen the causes/information listed on the Mayo Clinic website? http://www.mayoclinic.org/symptoms/burning-feet/basics/causes/sym-20050809. Not sure if this is helpful but may help with future discussions with your doctors. Don’t give up! I think it’s important to be your own advocate and stay proactive. Treatments that work for some people may not work for others…and there are a lot of scams when it comes to getting rid of pain and numbness.

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Hi John, yes, I’ve seen a couple of Nuerologist but my problem started in 2008 with burning pain and numbness in my buttocks, both legs, and left. Had two lumbar laminectomy over the years that corrected most of my pain with the exception of burning pain and numbness in my left food. My Neutologist thinks I have a biomechanical problem in my left foot. Tomorrow I’m going to see an orthopedic doctor at our local University Health Department. I have orthodistts that doesn’t help my pain and I take Gabapentin and a topical cream that helps the pain. Just thought I’d see if anyone here has anything like mine. Thank you John. Bob

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@robertlclark

Hi John, yes, I’ve seen a couple of Nuerologist but my problem started in 2008 with burning pain and numbness in my buttocks, both legs, and left. Had two lumbar laminectomy over the years that corrected most of my pain with the exception of burning pain and numbness in my left food. My Neutologist thinks I have a biomechanical problem in my left foot. Tomorrow I’m going to see an orthopedic doctor at our local University Health Department. I have orthodistts that doesn’t help my pain and I take Gabapentin and a topical cream that helps the pain. Just thought I’d see if anyone here has anything like mine. Thank you John. Bob

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Thanks Bob. Hopefully you will get some answers tomorrow that will help. Also, hoping that someone else with similar symptoms will be able to provide some helpful information. Good luck with your appointment tomorrow. Please keep us updated if you can.

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Colleen, I have lost the site for the lady in South Africa who has a diagnosis of brain atrophy as my husband does Can you post that again for me. Noreen

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@howardjames

Colleen, I have lost the site for the lady in South Africa who has a diagnosis of brain atrophy as my husband does Can you post that again for me. Noreen

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Hello Noreen,

I did a bit of research and I believe you are talking about the previous discussion that you started called Cerebellum Brain Atrophy where you connected with another member from South Africa. Here is the link to that discussion, https://connect.mayoclinic.org/discussion/cerebellum-atrophy/.

If you have further questions, feel free to send me a personal message by clicking on my name and then clicking on the envelope symbol in profile. That way you can send me a message that is just between you and I if you have any additional questions of if I did not answer the question you were asking Colleen.

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