Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016

Anyone here dealing with peripheral neuropathy?

Interested in more discussions like this? Go to the Neuropathy group.

Neuropathy and diet? When everything else falls short of providing relief, what about dramatically altering your diet? Has anybody tried this? I'm not referring to just eating more vegetables, fruits, whole grains, etc., the usual stuff that is discussed and recommended. Rather, I'm wondering if some holistic, seemingly weird approach to eating different could make a difference. Any thoughts on this topic?

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@betoma

Neuropathy and diet? When everything else falls short of providing relief, what about dramatically altering your diet? Has anybody tried this? I'm not referring to just eating more vegetables, fruits, whole grains, etc., the usual stuff that is discussed and recommended. Rather, I'm wondering if some holistic, seemingly weird approach to eating different could make a difference. Any thoughts on this topic?

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@betoma, After reading Dr. Terry Wahls story on how she was able to successfully address her MS symptoms through cellular nutrition I am a believer that it can help neuropathy long term and provide some relief — https://terrywahls.com/about/about-terry-wahls/. Not sure about the weird approach part but I have tried to drastically reduce the amount of carbs I take in daily and also do intermittent fasting to control my eating window. You might want to check out this discussion:

Low-carb healthy fat living. Intermittent fasting. What’s your why?: https://connect.mayoclinic.org/discussion/low-carb-healthy-fat-living-intermittent-fasting-whats-your-why/

You also might find these references helpful:
— The Metabolic Syndrome and Neuropathy: Therapeutic Challenges and Opportunities: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3881591/
— Metabolic syndrome as a risk factor for neurological disorders
https://pubmed.ncbi.nlm.nih.gov/21997383/

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My feet burn constantly and its spreading up to knees. I used meds, ice, and elevate legs in couch. I have had biopsy and have Small Fiber Neuropathy in left foot years ago but thank it is spreading. I am allergic to Gabepentin and have gained so much wt. I too pray for research!!

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@johnbishop

@betoma, After reading Dr. Terry Wahls story on how she was able to successfully address her MS symptoms through cellular nutrition I am a believer that it can help neuropathy long term and provide some relief — https://terrywahls.com/about/about-terry-wahls/. Not sure about the weird approach part but I have tried to drastically reduce the amount of carbs I take in daily and also do intermittent fasting to control my eating window. You might want to check out this discussion:

Low-carb healthy fat living. Intermittent fasting. What’s your why?: https://connect.mayoclinic.org/discussion/low-carb-healthy-fat-living-intermittent-fasting-whats-your-why/

You also might find these references helpful:
— The Metabolic Syndrome and Neuropathy: Therapeutic Challenges and Opportunities: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3881591/
— Metabolic syndrome as a risk factor for neurological disorders
https://pubmed.ncbi.nlm.nih.gov/21997383/

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john – thanks for taking the time to compile your resource filled reply. There's so much nutrition and diet information out there, often conflicting, so it's hard to discern what might be best for addressing neuropathy issues. I'll take a look at these links. Thanks again

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Does anyone experience spasms with the neuropathy?

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@amahoff

Does anyone experience spasms with the neuropathy?

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Welcome @amahoff, Members have shared experiences that may be helpful in the following discussions:

— Muscle Spams and Neuropathy: https://connect.mayoclinic.org/discussion/muscle-spams/
— Does Small Fiber Neuropathy also cause muscle spasms?: https://connect.mayoclinic.org/discussion/does-small-fiber-neuropathy-also-cause-muscle-spasms/

Have you been diagnosed with neuropathy?

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Anyone have relief for fingers and toes? Gabapentin has not worked. Constant pain.

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@marie1959

Anyone have relief for fingers and toes? Gabapentin has not worked. Constant pain.

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Good evening @marie1959, it appears that you have been a member of Connect for quite some time….since 2018. I hope you have benefited from the posts you have read along the way. If I understand your discussion title, you are now dealing with PN (peripheral neuropathy) that seems to be centered on your fingers and toes. That is quite similar to my history. I was diagnosed with SFN (small fiber neuropathy) about the same time and for the same reasons. I did have a skin biopsy which supported the SFN diagnosis and I have been struggling along with tingling fingers and toes. I also started with Gabapentin. It worked as long as I took it only at night.

Do you take any other medication? Have you tried a compounded topical created by a compound pharmacist. I also found that to be helpful. It is lidocaine based and your clinician can add other components as your PN changes.

Several years ago I was introduced to medical cannabis as an alternative to the compound. I use a 1:3 CBD/THC balm from Papa and Barkley for acute pain and a 3:1 cbd/THC for acute pain. The P and B website has very helpful information that began my education. They are also helpful through their customer service portal.

You may want to try to compounded ointment first to see if you can find relief. I don't know where you live and what your state laws are for marijuana.
If you will let me know how you feel about these suggestions, I will continue to support your efforts.

May you be free of suffering and the causes of suffering.
Chris

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@marie1959

Anyone have relief for fingers and toes? Gabapentin has not worked. Constant pain.

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I have not taken any other meds. Tapering the gabapentin now and will try another med. I have not tried any compounds. I live in Minnesota. Thank you for your comments.

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@marie1959

I have not taken any other meds. Tapering the gabapentin now and will try another med. I have not tried any compounds. I live in Minnesota. Thank you for your comments.

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Hi there, fellow Minnesotan. This is a great state with wonderful folks and superb medical care. It is also a state that permits the use of medical cannabis when prescribed by a physician for a chronic condition. Have you checked on that possibility for yourself?
Chris

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@marie1959

Anyone have relief for fingers and toes? Gabapentin has not worked. Constant pain.

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Hi @marie1959, I would like to add my welcome to Connect along with Chris @artscaping. Chris has provided some great suggestions and experiences that have helped her. You might also find the following information from the Foundation for Peripheral Neuropathy helpful — Treatments: https://www.foundationforpn.org/treatments/, as well as the neuropathy stories from other members available in this discussion:

— Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

Are you able to share a little more about your diagnosis and any treatments you've tried?

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@marie1959

Anyone have relief for fingers and toes? Gabapentin has not worked. Constant pain.

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Hello @marie1959. I noticed you posted about peripheral neuropathy in your original post so you will see I have moved your post into an existing discussion on the same topic where members such as @trishh @betoma and @amahoff.

I also see the @artscaping and @johnbishop have come in to share some information with you. How are you feeling today?

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