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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Apr 25 1:31pm | Replies (2916)

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@lorirenee1

@rwinney Hi Rachel, I would say that I am almost positive you and I have Central Sensitization. We have so many classic features of it. I did read Jonathan Kuttner's book, Life Without Pain, and gained info and insight. At the time I read it, he was offering on line audio consultations regarding my pain. All I had to do was fill out some info, and Naomi Kuttner, his daughter, sent an audio response to me. Long story short, they do not do very well with nerve pain, as far as Central sensitization techniques. I appreciated her honesty, and did not take Jonathan Kuttner's on line class about handling pain. It was not cheap, and I just did not feel it would help. However I do things on my own as far as Central sensitization techniques. However, to be really effective, I would have to do them all day long. I hurt all day long, and it is worsening. How can a person focus only on their pain, all day long? I do so many things to distract myself, but I have to admit, the pain always haunts me in the background. Like constant background painful static, that just never stops. I work so hard at my life that it is exhausting in itself. Oy. What can I say. I just hope you get some help at Mayo. I hope I am scheduled for my DRG trial before I just go and cut my toes off. Meanwhile, I am gonna go listen to Hauser. He is dreamy, and helps me cope.....what a handsome man....Have a decent weekend. You are my warrior hero! Love, Lori

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Replies to "@rwinney Hi Rachel, I would say that I am almost positive you and I have Central..."

I hear what you're saying and agree with you. I just posted to Jeff about working hard and how exhausting it can be. I make no promises (regarding the books strategies) but, will continue to try and learn and share and seek personal comfort and distraction. Ughhh...truth is...Mayo's pain program scares the crap out of me. So, the hard work and strategies continue. YOLO (you only live once)!

Enjoy that hunky man you speak of! Now that it what we call distraction. 😍