Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016
@amandajro

Hello @jakedduck1. Are you requesting something be deleted that I can help with?

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@amandajro
Didn't my link delete?
I was trying to post a link to an “eating for Neuropathy” podcast but it didn't work. If it's still there please kill it.
Thank you,
Jake

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I just had an EMG a few weeks ago and was told by the doctor who did the test that I had peripheral neuropathy. I had an earlier video visit with a different neurologist before the test. I haven't heard anything since the test. I thought I would hear something about what I can do for it. It is mostly in my feet. They are numb and tingly. I feel like my balance is worse too. I have rheumatoid arthritis and Sjögren's syndrome and other autoimmune diseases too. I work full time on my feet all day. Also wondering about the TENS unit. I am wondering if you need a doctor or someone to show you how to use it. And is there a certain brand that is better than others.

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@ktgirl

I just had an EMG a few weeks ago and was told by the doctor who did the test that I had peripheral neuropathy. I had an earlier video visit with a different neurologist before the test. I haven't heard anything since the test. I thought I would hear something about what I can do for it. It is mostly in my feet. They are numb and tingly. I feel like my balance is worse too. I have rheumatoid arthritis and Sjögren's syndrome and other autoimmune diseases too. I work full time on my feet all day. Also wondering about the TENS unit. I am wondering if you need a doctor or someone to show you how to use it. And is there a certain brand that is better than others.

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@ktgirl – I had a TENS unit a few years ago thinking it may help with the numbness and tingling I had with my neuropathy but didn't find that it helped me but others have had some success and found them helpful. You may want to read through the following discussions to learn what others have shared.

Has anyone had success using Tens on their feet?:
https://connect.mayoclinic.org/discussion/has-anyone-had-success-using-tens-on-their-feet/
TENS Units — https://connect.mayoclinic.org/discussion/tens-units/

Here is a post in the first discussion with a YouTube video showing how to use a TENS unit on your feet —
https://connect.mayoclinic.org/comment/595359/

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Hello Hank @jesfactsmon – I just wanted to check in with you to see how things are going. Have you found anything new that helps your wife's chronic pain?

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@ktgirl

I just had an EMG a few weeks ago and was told by the doctor who did the test that I had peripheral neuropathy. I had an earlier video visit with a different neurologist before the test. I haven't heard anything since the test. I thought I would hear something about what I can do for it. It is mostly in my feet. They are numb and tingly. I feel like my balance is worse too. I have rheumatoid arthritis and Sjögren's syndrome and other autoimmune diseases too. I work full time on my feet all day. Also wondering about the TENS unit. I am wondering if you need a doctor or someone to show you how to use it. And is there a certain brand that is better than others.

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I’ve not heard of others in the group who have Sjogren’s, although I’ve only been on Connect since January. I started having neuropathy symptoms in November, although I’ve had some feet issues and very minor tremors for a number of years which were never diagnosed. I now have terrible tremors, numbness and tingling in my legs and feet, tingling in my hands, and pain pretty much everywhere.

I saw a neurologist in late March who suspected I had Sjogren’s, as I have PBC and Raynauds (and a liver transplant). I’m hopeful you can find a benefit from TENS. Please let us know. I’m walking 1.5-2.5 miles each day, plus some exercises. I’ve read these help at least with the fatigue…certainly hasn’t helped the pain! I’m being referred to a hematologist for more blood work as they think there is something else going on. And a rheumatologist. I’ve been reading a lot about Sjogren’s…I’d definitely odd and concerning.

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Just having a very bad day – my feet feel numb, heavy & stiff like steel- any solutions are very welcome.

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@solobeee

Just having a very bad day – my feet feel numb, heavy & stiff like steel- any solutions are very welcome.

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@solobeee I'm sorry to hear you are having a bad day. I have the numbness and sometimes the feet feel a little heavy. Once in awhile I feel the stiffness but not very often anymore. I find keeping my feet and legs moisturized helps a lot. I sleep with low top loose socks on and before I put the socks on I rub my feet with a moisturizer lotion. I also use it on my legs but not as much. I try to do at least 30 minutes of walking or riding my exercise bike daily which I think helps also.

There are a couple of good neuropathy websites where you can find a lot of different alternative treatments that have been found helpful.

– Neuropathy Commons: https://neuropathycommons.org/
– Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/living-well/

You might find the following discussion helpful where members including myself have shared what helps them –
Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

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@johnbishop

@solobeee I'm sorry to hear you are having a bad day. I have the numbness and sometimes the feet feel a little heavy. Once in awhile I feel the stiffness but not very often anymore. I find keeping my feet and legs moisturized helps a lot. I sleep with low top loose socks on and before I put the socks on I rub my feet with a moisturizer lotion. I also use it on my legs but not as much. I try to do at least 30 minutes of walking or riding my exercise bike daily which I think helps also.

There are a couple of good neuropathy websites where you can find a lot of different alternative treatments that have been found helpful.

– Neuropathy Commons: https://neuropathycommons.org/
– Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/living-well/

You might find the following discussion helpful where members including myself have shared what helps them –
Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

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Thanks this is all good info. I’ve been doing much of what u suggest – can’t figure out why it got so bad today. Have vibrated them, iced them for an hour & now applying some topical 1:1 Med Marijuana. Plan to take a bike ride tomorrow- we’ll see what’ll be. Tx.

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Jake, I changed the link to the webinar in your post to the Foundation for Peripheral Neuropathy's link. The link you posted was your registrant link, which included your email address.

All, see all FPN webinar recordings here: https://www.foundationforpn.org/living-well/fpn-media-center/

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@colleenyoung

Jake, I changed the link to the webinar in your post to the Foundation for Peripheral Neuropathy's link. The link you posted was your registrant link, which included your email address.

All, see all FPN webinar recordings here: https://www.foundationforpn.org/living-well/fpn-media-center/

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@colleenyoung
Oops, thank you.
Jake

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Just a home remedy suggestion to ameliorate uncomfortable PN symptoms. In my case burning and a constant sensation of sand between and under my toes . in south africa they sell mohair socks for diabetic neuropathy. I bought some when I got non diabetic PN and I highly recommend them. The fine hairs on the socks seem to interfere with the signals from damaged peripheral nerves and feet feel almost normal when wearing them all day and especially for sleeping at night.. I highly recommend mohair socks to all…

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