Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016
@pfbacon

Thank you, Colleen Young, for the links to articles about some of the substances members mentioned. Some things sound too good to be true, and prove to be so.
While we're at it, I call 'shenanigans' on the 'essential oils'. I wonder what Mayo Clinic has to say about them. If members are wasting money on perfumed hype – that is sad ! If the oils really are 'essential' then I want to buy some too ! Peggy

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@pfbacon When considering complementary or alternative treatments, be open-minded yet skeptical and do your research. Learn about the potential benefits and risks. Here is an article from Mayo Clinic that might interest you about evaluating claims made by the producers and/or sellers of supplements, natural products and other alternative medicines. http://mayocl.in/2tGC0Jp

For neuropathy, Mayo Clinic's treatment goals are to manage the condition causing neuropathy and to relieve symptoms. See more here: https://www.mayoclinic.org/diseases-conditions/peripheral-neuropathy/diagnosis-treatment/drc-20352067

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Yes, Ma'am, I am: hopeful, open-minded, skeptical of products that are marketed like 'snake oil', as cure-all miracle drugs, and I do research and look for the real story. That's why I like being part of Mayo Clinic. I subscribed to Mayo's 'health bulletin' back when it was printed and mailed to our homes (the Berkeley Wellness Letter as well). I ask my doctors before I take anything. And I ask here because no one has more experience with neuropathy than we do. We're all stronger for sharing what we find. Peggy

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@pfbacon

Yes, Ma'am, I am: hopeful, open-minded, skeptical of products that are marketed like 'snake oil', as cure-all miracle drugs, and I do research and look for the real story. That's why I like being part of Mayo Clinic. I subscribed to Mayo's 'health bulletin' back when it was printed and mailed to our homes (the Berkeley Wellness Letter as well). I ask my doctors before I take anything. And I ask here because no one has more experience with neuropathy than we do. We're all stronger for sharing what we find. Peggy

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So true, Peggy, so true.

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@jesfactsmon

Hi Lori, I read this post and, having never heard of it before, immediately picked up on your mention of the Wiseman Healing Balm. Looking at it on Amazon I see it says it helps neuropathy. Few products actually mentions neuropathy in their marketing. I am going to do some further research on this. Also, you may have read on my previous post that my wife Linda tried the Maeng Da kratom from Etha and did not feel well afterward; she does not know if it was from the kratom or an effect of something else which easily could be the case. She will try it again soon. It's not unusual for her to have a negative reaction to something others have had positive results from and so she easily becomes gun shy. Thanks again for mentioning the Wiseman's by the way, I will be looking into it. Hank

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Hi Hank, Yes, try the Wiseman Balm. I find I need to apply it heavily for it to work well. It does cool down the burning, if applied heavily. As far as the Etha Kratom, it is essential to use the least amount of pills, that will still make the pain go away. It could be she used too many pills, and this made her feel sick, especially if she had a bit of nausea. I have never gotten sick from Kratom, but I have read that sometimes people think if 5 pills worked well, maybe 8 pills would be even better. This is not what you do with Kratom. You really need to find a sweet spot, where pain is gone or diminished, and the pills can be handled. Always the least amount possible, to get the desired effect. Anyway, the best to you and your wife. I love that you help her so much. A great testimony to the human heart! Take care, and I will help you whenever you need…Lori

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@mstrasse1

Good Morning Lori:
I have had some differing results with the different Kratom I have used. Actually only 2 types.
Bali Red and Maeng Da Standard. Bali Red seemed to work well for about 10 days – relieving pain at night and then pretty much stopped working. Maeng Da Standard actually makes me sleep well, but does not quite relieve the pain.
I also have Bali Select Green but yet to use. I buy at KratomCaps.com.
What type and how much do you use? And where do buy yours.
Hope you have a great day.
Thanks Mike

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@mstrasse1 Hi, Mike. I only buy from Ethanaturals . I buy the pills, not the powder, and buy the pills recommended for body discomfort/pain. I don't know if you know it, but you are supposed to rotate the kinds of capsules or pills you take. Never keep taking the same type, or they do stop working. Etha seems to really take pain away without side effects. I take about two and a half grams per dosage, which is equivalent to 9 pills. That is the amount which seems to work for me, but everyone is different. Find the least amount of pills that you can take, and still have the pain vanish. Best of luck. Lori

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@lorirenee1

@avmcbellar Thanks for your kindness! The frankincense and myrr that I use is a salve, not an oil. Never used oils. Thanks again. Lori R.

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@lorirenee1 I bought the WIse men balm and am using it about 2 weeks now I do like it using it like it says I went off of it and my old symptoms came back .. I am a advocate of Essential Oils . I have a diffuser and found that Clove oil and some others in a diffuser are good for cold virus and others. My neuropathy is in my thighs from nerves in my back when I haven't used it which is now I hurt so am going to apply some now . Thanks for the post on it . Have a good blessed day Stay safe

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@lioness

@lorirenee1 I bought the WIse men balm and am using it about 2 weeks now I do like it using it like it says I went off of it and my old symptoms came back .. I am a advocate of Essential Oils . I have a diffuser and found that Clove oil and some others in a diffuser are good for cold virus and others. My neuropathy is in my thighs from nerves in my back when I haven't used it which is now I hurt so am going to apply some now . Thanks for the post on it . Have a good blessed day Stay safe

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@lioness I am so glad the Wisemen product is helping you. I have to apply it very thick, but it does help the intense burning. You have a blessed day, as well. Stay safe! Lori

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@lorirenee1 Thanks it is I may have to apply it heavier on my thighs will try this

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After several years of intermittent PN in my feet recently it moved to my lower legs and then to my hands and arms. Now I can go to bed and fall asleep feeling no symptoms, then I wake up after being asleep 3 or 4 hours and the pain will have come back. Usually after going to the bathroom I am able to go back to sleep, but sometimes the pain is too distracting and I have to get up. The pain gradually begins to subside, hands first, then after one or two hours it pretty well goes away and I can get through the rest of my day practically pain free. Then I go to bed at 10 PM and the cycle repeats. Mayo Clinic called it idiopathic and progressive. Does anyone else experience this type of PN?

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Hello @catro How troubling this disease is and unpredictable with each persons experience being so unique. I'm sorry you have progressive neuropathy. I do as well and yes, I experience all of your pain areas but, not in such a distinct pain pattern as yours. I have polyneuropathy and my findings have been that areas rotate in pain intensity. Flares may be for days in certain body parts then trade off. I have no moments of escaping pain anymore. Earlier on, my nights were filled with pain and I'd be up through the night. I suffer from insomnia as a result. Now, for the most part I sleep through the night (once I get to sleep anyway) with the help of medical marijuana. Have you tried it for your pain? Does heat or ice help you duting your night flares? Do you use any topicals? I'm glad you have moments of being pain free! That's awesome!!! Take care.
Rachel

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Yes, catro and Rachel, Neuropathy is progressing capriciously in my body too. It moved up from my toes, into feet, legs, arms and hands. I wonder what's next … Recently it flared up in my toes again – like a red hot sabre ramming through one toe into my body. My diagnosis was Axonal Sensory Neuropathy. Peggy

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I have to change medicines now and then. I too am trying to be pain-free all day and night. Walking around helps. I always feel better in the late afternoon and evening, when I've been walking around all day. Mornings are the hardest. Anyone else? Peggy

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