Anyone having PMR flareups after going off their medication’s abruptly

It appears that you still have an active case of PMR and that the meds you were on were able to tamp it down but not eliminate it. Please talk with your doctor as to the best nest step to help manage the PMR symptoms.

I agree. Talk to your Dr. I do not believe that one medication fits all. Many have found where one drug does not agree with them but another does. There are many options. Maybe Kevzara or Actemra which are newer PMR drugs may help with no side effects. I think anything is better than having to increase your prednisone. Methotrexate is a RA drug used as the first line of defense. But there are many others.

"I think anything is better than having to increase your prednisone."
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Not always ... some of my flare-ups were pretty severe. I remember a time when I thought I was going to die and succumb to the pain alone. It wasn't PMR though. It was radicular leg pain from severe spinal stenosis. I was hanging on from the top of a door thinking I was going to die if I let go. Someone convinced me to let go. I upped my Prednisone dose to 60 mg and the pain went away.

I told my rheumatologist about the incident while she was studying my MRI. She wasn't so pleased that I took so much Prednisone. She told me what she would have recommended. She said a localized steroid injection, physical therapy and probably surgery would have been better. She was happy the 60 mg of Prednisone relieved my pain though. I lied and told her "next time" I would try to do it her way.

At the time of this incident .., I had an abscess on my butt. I recently tapered off Prednisone when the pain started. It amazed me how that abscess caused so much back pain. I saw a doctor on a Friday who prescribed antibiotics for the abscess and said the antibiotic should help with the pain. The pain got worse when the door incident happened on Sunday. I went to the emergency room after I took Prednisone but had to wait for hours for the MRI to be done. By then the pain was gone.

I agree with "not always" even as it pertains to PMR. I know many try to treat the PMR with life changes etc. I was not one of those. It gave me my life back. So a correct response to Lindaadele would be manage the PMR and do your best to move to something else without the long term effects. Although all drugs have some side effects. You are a medical marvel..

Thank you very much to your response I appreciate it!!! I am an exception to the rule with medication’s. I was on several medication‘s that worked and then stopped working but none of them did me any good in the long run but made me sicker. I have never been good with medication‘s for many many years any medication’s. Right now I am taking one day at a time and see how things go. thank you again for your reply!