Anyone having any luck with treating PMR without any specific medicati

Posted by lindaadele @lindaadele, Aug 1 1:21pm

The reason why I’m asking this question is that no medication’s for PMR have done any good for me except to make me feel horrible and the pain was always still there. Some of the medication‘s worked at first and then they did not work. meanwhile I always felt not so good. Any information you could give me would be much appreciated! Thank you

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Profile picture for vjm0223 @vjm0223

I’m waiting for my mri on sept 5 for diagnosis of either pmr or spinal stenosis.
I’ve had the pain for over 2 months.
In the meantime, I’ve been taking, on the advice of my GP, 1600 mg ibuprofen and 2 Tylenol arthritis. This keeps the pain just bearable, however, the meds are really starting to hurt my stomach even with taking a rx for a stomach protectant.

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Take them with yogurt, milk and food, even an anti acid if you must! You don’t want an ulcer!

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Profile picture for vjm0223 @vjm0223

Hi there again. I’m just giving you a little update today.
Yesterday I got my appointment for an MRI on sept 5.
I have been doing a ton of reading on what else could cause the same symptoms as pmr.
In the past 10 years I was diagnosed with osteoporosis, fractured my L1 and L2 as well as a very bad low back sprain in May of this year.
What I found was that spinal compression can have pretty much the same symptoms as pmr. I have much pain sitting because of my lower back pain.
It will be interesting what my MRI shows.

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Had my cervical and lumbar MRI today. It took almost an hour in the “tube”. My shoulder and hips were in agony when I came out of there and have not calmed down yet. My EMG is next week and I am feeling anxious to get results. Hope all goes well with your MRI.

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Profile picture for fudge08 @fudge08

Had my cervical and lumbar MRI today. It took almost an hour in the “tube”. My shoulder and hips were in agony when I came out of there and have not calmed down yet. My EMG is next week and I am feeling anxious to get results. Hope all goes well with your MRI.

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Oh gosh that’s a long time in there.. Hope me just having the lumbar area is shorter.
Mine is at night 10:45pm, already past my bedtime so maybe I’ll nap in the tube.
Thanks for your concern.

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Profile picture for vjm0223 @vjm0223

Oh gosh that’s a long time in there.. Hope me just having the lumbar area is shorter.
Mine is at night 10:45pm, already past my bedtime so maybe I’ll nap in the tube.
Thanks for your concern.

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I am sure that will be much better! Take care

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I am wondering if prednisone never worked, why they continue to think it is pmr? One of the only real standards used to diagnose PMR is that prednisone is like a miracle once you take it.

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If prednisone doesn’t work you may not have PMR. Has your rheumatologist checked for other things that mimic PMR?

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I'm back on 4mg prednisone after an unsuccessful taper in July. Am probably not at the dosage I should be but have been trying non-medication avenues also. I went to a naturopath 2 days ago and she used an electronic acupuncture pen to stimulate certain accupressure points and it has really helped relieve discomfort in hips. I have also felt a bit lighter and not so weighed down and achey upon getting out of bed the past 2 mornings. The discomfort seems to be returning but it seems a bit less intense so far. I haven't had this result from traditional needle acupuncture which I thought was interesting. Trying a vitamin IV tomorrow.

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Profile picture for fudge08 @fudge08

Thank you for sharing that information. Please let me hear your MRI results. I have an MRI on September 2, and an EMG test on the 12th.

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Well I’m updating you on my MRI which was supposed to be last night.
I’m all ready gowned up and in the mri room and the tech says “ so you’re requisition is for an mri on your left thigh”.
I’m like what? No, it’s supposed to be for my lumbar spine!
To say I was upset is an understatement.
Someone at my doctors office screwed up.
Will be calling them on Monday.

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Profile picture for vjm0223 @vjm0223

Thank you for asking.
I go for my lab work tomorrow that the rheumatologist ordered, so I still don’t know what’s wrong with me. I have had much pain in both shoulders since my initial visit.
I have continued with liquid Alieve x2/day and Tylenol for arthritis x2/day and this has taken the edge off.
I’m much better when moving around. Sitting is the worst.

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I'm where you are. Took almost 3 months to get an appointment with a rheumatologist. I have substituted prescription Celebrex for the Alieve but think the Alieve might have been better. I also take the acedminiphen (Tylenol) with the NSAID. My neck kills me and the muscles in my shoulders hurt. Those muscles were so tight and I go for a massage weekly and all he does is my shoulders and neck and it has made a vast improvement. I had acupuncture and they did cupping which helped the muscles in the upper back and shoulders. I had something like this 25 years ago. Got thru it with NSAIDs for a few months. I never had a diagnosis really. This time I have massive inflamation on my left side, my knee and foot are very painful. I need a cane in the morning. Good luck.

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michael.e1920
I'm on Actemra, I started in December of 2020 and it has worked well for me. I'm also taking prednisone alternating 3 mg and
2 mg every other day. The pain in my back, neck, arms, knees, elbows, and hands never really goes away. A lot of my back pain is also due to my spine in fused from L3 to S1.

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