Anyone have severe fatigue then next day sooo ugh!

Posted by catherinej @catherinej, Apr 30 5:16pm

I got COVID 3 years ago, then a second time this fall. My fatigue is so bad after almost any regular day, I sleep for 36+ hours. Additionally, I get a weird smelling sweat during this time. I have the other 'regular' long COVID symptoms however this is the worst. The first time I slept for 3 days. Anyone else?
THANK YOU

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abbydoo | @abbydoo | May 5 8:39am

In reply to @mvpointer "What are your neuro issues. I tremble now." + (show)

I have periods of trembling. Also much tingling in my hands and legs.at times

red79 | @red79 | May 6 5:26am

Aww bless you Catherine that's so nice to have someone that supports me,hugs to uxx

diverdown1 | @diverdown1 | May 7 9:05am

I am in the same boat. The post exertion malaise (PEM) is terrible. I read some research regarding this. They say that the virus effects the muscles and metabolism. I am glad they are doing research, but I am waiting on a way to treat this. The times I feel like doing things, I just go ahead as I may not feel like it tomorrow. It is important, for me, to stay really present. Today is all I have. If I project, I can start feeling really hopeless. The mornings are the worst. Medication has helped, but I used to run and workout and now, if I even walk a half mile, the next morning I have PEM. Although I have improved in the two years of battling this sh&t, I am really ready to be normal again. I feel for all of you and myself. Hang in there.

jimmy01 | @jimmy01 | May 7 9:45am

In reply to @diverdown1 "I am in the same boat. The post exertion malaise (PEM) is terrible. I read some..." + (show)

I'm glad you're doing so well, my friend. Congratulations. Can you tell us a little bit about the food

tnrall | @tnrall | May 7 10:32am

I'm so sorry you are experiencing this. The fatigue is brutal. You maybe experiencing your first true crash from PESE. Check out this website and see if it seems applicable.

https://longcovid.physio/post-exertional-symptom-exacerbation

diverdown1 | @diverdown1 | May 7 11:10am

In reply to @jimmy01 "I'm glad you're doing so well, my friend. Congratulations. Can you tell us a little bit..." + (show)

The food?

paulanurse | @paulanurse | May 7 12:46pm

In reply to @diverdown1 "I am in the same boat. The post exertion malaise (PEM) is terrible. I read some..." + (show)

Hello
I have found that dealing with PEM peripheral neuropathy and brain fog to be a horrible part of long covid. After a 30 year nursing career and being healthy I got COVID in 2020 when there were no vaccines had a moderate case and had every symptom with it but was then hit with long covid. I have continually tried to push myself to work and recondition my body but get set back each time. I am fortunate enough that my husband can provide for us so I can be home or I would be living with my mother as my symptoms are too bad to work. I hope research gets better as I would like a better quality of life after giving 30 years of my life to help others. I wish you and everyone who reads this recovery and healing as this disease is so very complex and the mindset now is to push aside those that have any lingering issues and it’s like covid is being forgotten but people are still dying every day and to their loved ones it’s very real
And to those of us with long covid we are reminded every day

catherinej | @catherinej | May 7 5:54pm

In reply to @diverdown1 "I am in the same boat. The post exertion malaise (PEM) is terrible. I read some..." + (show)

Thank you for sharing...I have run for years and try, then out for a couple days sleeping. I have started again this week and making that my main activity for the day. I am on 2 different inhalers and hanging in there. So glad you are feeling normal 🙂...it is very encouraging.

diverdown1 | @diverdown1 | May 8 8:13am

In reply to @paulanurse "Hello I have found that dealing with PEM peripheral neuropathy and brain fog to be a..." + (show)

I actually applied for disability and that was a joke. I am not married and my partner passed away before Christmas. I am hoping that this goes away as I really struggle as I am sure you know. My only hope will be a remote job. I am so sorry we have been struck with this.

paulanurse | @paulanurse | May 8 10:40am

In reply to @diverdown1 "I actually applied for disability and that was a joke. I am not married and my..." + (show)

My condolences to you losing your partner. I agree as well about the disability. I have read so much about how negative the process is that when everyone tells me that I should apply I reply that I know it’s a tedious then ultimately hopeless venture. I hope that you find some remote work that will be doable for you.

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