Anyone had treatment for thickening of patchymeningeal.?

Posted by torontoguy @torontoguy, May 23 9:44pm

A rare disease the lining that covers the brain which is under the skull thickens and exerts pressure on the brain that has caused me double vision,some memory loss seeking treatment in Toronto.

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John, Volunteer Mentor | @johnbishop | May 24 7:07am

Hello @torontoguy, I'm not sure if you saw my response to your first discussion here - https://connect.mayoclinic.org/comment/1171012/. @bikeforfun01 also responded that a family member has a similar experience and was wondering if you had an update since you first started the discussion.

I did a search of Connect for "Pachymeningitis treatment" and see that there are 17 different comments from members. Here's the link that lists the comments if you would like to scan through them - https://connect.mayoclinic.org/search/comments/?search=Pachymeningitis%20+treatment.

Have you started any treatments or have the doctors suggested any treatments to help with the symptoms?

77smith77 | @77smith77 | May 24 3:32pm

Had Pachymenengitis 4 years ago. Falling down, Extreme pain behind R eye. Admitted to hospital of the University of Pennsylvania from the ICU at the Philadelphia VA. Diagnosed by open brain biopsy and many MRI's and CT scans. Treated in ICU with Pulse Dose Steroids in ICU and Rituximab IV after discharge. 2 weeks in ICU. Needed PT, Speech Therapy and 36 sessions of Cardiopulmonary rehab. Doing well now but it still shows on yearly MRI. I am 80 y/o.