Anyone had temporal seizures but fully awake only can’t respond, move?

No that sounds pretty scary. My wife has woke up to all mine so far mainly in my sleep. The other day I had an awake one at work but only couldn’t remember anything or reply etc. once passed I was fine had a small headache but glad to hear you got somewhat answers. Hope you continue to get better and hopefully someone will know better advice to give you.

@santosha
I thought about a question on some of the comments I have received. A few people stated to stay awake later before an EEG but if mine are happening in my sleep around about same time and fee and far between would that actually help? And the only thing I have ever done is an EEG in 2023 and it came out fine.

Hi @randallshields56
I could clearly feel a decline in my cognition and executive functions, which was later confirmed by my neuropsychological assessment. Since my diagnosis of temporal lobe epilepsy (left side), I've learned that this type of epilepsy can significantly affect cognitive abilities. Additionally, my EEG revealed epileptiform activity starting in my temporal lobe and migrating to my frontal lobe—the region responsible for executive functions such as planning, focusing, remembering instructions, and managing multiple tasks.
Have any of your EEGs shown epileptiform activity spreading from your frontal lobe to your temporal lobe? Have you had the opportunity to undergo a neuropsychological assessment?
Chris

what meant on brain overload was my having to go back many years to try and remember certain dates and times and locations, asked numerous questions before i could give out the previous answers. caused short circuit of sorts. The sun glasses just helped with keeping the strain off the eyes.

welcome to the group,
glad you got a second opinion, i had some frontal lobe seizures and came to realize it wasn't sleep related but that my mind couldn't process the information being thrown at me as fast as it was being given to me. basically brain overload on trying to process to much to quickly, my daughter bought me some sunglasses that cut the glare coming in from the sides which helped with not the eyestrain but mad my outside time much better. not sure if anything here helped , but i am hoping you have a blessed day.

@santosha
Thank you for the encouragement I hate taking meds for sure. And no I haven’t done anything so far just trying to get this under control it’s new and definitely a shock to me.

Hi @crissyh76
I know some people who are doing well on Trileptal (Oxcarbazepine), and I hope it works just as well for you.
I completely understand what you're going through right now. When I started my treatment in 2019, I experienced similar hard feelings. I'd been a healthy woman my entire adult life and had taken very few medications—just birth control pills, really.
Starting treatment brought so many questions, and my anxiety spiked, which unfortunately lowered my seizure threshold. I found it helpful to educate myself about epilepsy, and yoga gave me a way to calm down (my teacher always reminds me not to anticipate possible "belly pains"). But the most valuable support came from working with a neuropsychologist.
Have you considered this kind of support as you begin your treatment?
Chris

@santosha
Nothing new just new med and wait for appointment for EEG. The med is Oxcarbazepine.

@jakedduck1
Yes in this state that is the deal with the license I guess I just got lucky and they didn’t submit mine. And we are switching from Kepra due to starting out on 500mg twice daily to 750 twice daily and with CPAP the quack I was seeing just wanted to up my med and pretty much just told my wife that it was a pattern we had. He didn’t mention anything but med and increase etc. I will admit I am having a hard time facing the fact of this issue and I am struggling tremendously on having a med non stop. I want answers as does everyone else I get it trust me just lost her tbh. I am glad you got better and hope you enjoy your family and have awesome support just trying to get things figured out here sorry if I come across rude or not grateful I don’t want to cause headache to my family etc. I have always been very independent and a worker and this is starting to effect that so I am struggling.

@crissyh76
Nocturnal seizures are quite common and perhaps were due to poor sleep. Nocturnal seizures often happen in the early morning when people are getting close to or waking up.
As you said, “you probably can’t answer,” you're right, and unfortunately, you'll probably never know. No one in my family was known to have seizures. Since I got them now my brother and his two kids have seizures too. None of theirs are nearly as bad as mine were.
It is ABSOLUTELY ESSENTIAL to take your seizure meds EVERY DAY WITHOUT FAIL.
teenagers know it all and I was no exception apparently and I decided I didn't need to take my medication and I started having recurrent seizures that would not stop. This is called convulsive status epilepticus and is a life-threatening condition. I ended up in the hospital in an eight-month-long induced coma which was the only way the doctors could stop the seizures.
When the doctor woke me up, I forgot every memory I ever had. I didn't know who my parents were. I used to play the piano when I got home. I didn't even know what the piano was. I didn't know anyone or anything. Take your seizure medicine regularly and don't let this happen to you. I stopped taking my medication and needlessly put my family through all kinds of grief. They were called to the hospital three times with doctors saying they didn't think I was going to make it through the night. Take your medicine regularly and don't chance putting your family through such agony. Believe me, if you accept your condition and accept your new normal your life will be happier and more fulfilling and productive even though their may be challenges that may occur.
As far as driving is concerned here in California doctors are required to notify DMV.
Do you know what medication you're switching to? I'd be curious as to why the doctor wants to switch from Keppra instead of trying to increase it. Did the new doctor tell you what type of epilepsy you have?Where your seizure focus may be (where seizures originate.)
Take care,
Jake