Thanks. I can’t eat bread muffins, pasta without becoming lightheaded, retching and diarrhea. It’s almost 4 mos. since surgery and still using j-tube for supplemental feedings. I have no feeling of hunger or desire to eat. Hope this ends soon. I appreciate your input.
@smanseau definitely the carbs,causing my delayed dump syndrome, getting them under control ,breads pasta cereals,chips all a no go in big amounts, would get dizzy,panic attacks, stomach trouble, suger drop down to 48 or so...now lots protein drinks with low carbs,protein bars,cheese sticks beef sticks,ground turkey on low carb wraps,tuna on wraps,be sure add mayo,olive oil,for calories, also heavy whipping cream for excellent calories, in your coffee or in half cup milk,,finally gaining lil weight back and no syndrome stuff....boy I miss my patatos, patato chips,pasta,s...lol...
I’m 5 years out from surgery. I’m doing great 👍 except for occasional early dumping. Everyone’s journey is different, I believe because no one’s surgery/treatments are the same and your age plays a role.
For the past five years I’ve considered having a pyloromyotomy to relax my pylorus. I’ve hesitated because I’m afraid it might increase dumping syndrome,
and because dumping has improved over the past 3 years.
Some of my experiences: Carbs don’t seem to matter to me. I usually have some type of cake and milk a couple of hours before I go to bed almost every night.
One thing I’ve been trying to understand is if I drink 2 or more beers before dinner I can eat almost whatever volume of food I want. (Like normal people)
A couple years ago my BM’s were very loose, green and sticky. I stumbled upon a study on PEI (pancreatic enzyme inefficience) that states it’s a good idea for people who’ve had any type of stomach surgery to take pancreatic enzymes which is called ( pancreatic enzyme replacement therapy) I bought a bottle on Amazon from Pure encapsulations and within 24 hours my BM’s improved a lot.
I was on immunotherapy for 10 months, it destroyed my
Thyroid which gave me hypothyroidism. Your thyroid regulates everything in your body including digestion. The standard treatment is some form of levothyroxine. It doesn’t work for 20% of people. Took me 4 years to find out that I was one of them. I’m currently on Armour thyroid, which has helped with my digestion along with brain fog and fatigue.
I also think that over time your body adapts.
Hi, I am so glad to know so many patients have similar experiences.
I have done chemotherapy and radiation therapy February 2025, then surgery April 2025, almost 1 year ago.
Dumping syndrome has been a big every morning event till September 2025, then slowly not every morning things. But it has back again in last a few months. I don't know why it happened again,,, but understand still my new systems are under construction.
So many & so much patients for eating and drink some fluids.
Hi from Tasmania, I’m nearly 2 years post surgery (chemo and radiotherapy prior to that). Eating in the early stages of recovery was difficult and included feeling pretty nauseous if I over did it quantity wise - it would resolve within about 30 minutes. I assume this was dumping syndrome. While there’s little doubt some EC patients are more prone to dumping syndrome, getting your head around limited meal size and the need to eat frequently is an important part of managing the situation. At the (nearly) 2 year mark, I’m able to eat larger quantities and few foods cause issues for me. It seems everyone has their own story to tell, so don’t assume you’ll have ongoing problems.
Best wishes for your recovery. Geoff
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@smanseau definitely the carbs,causing my delayed dump syndrome, getting them under control ,breads pasta cereals,chips all a no go in big amounts, would get dizzy,panic attacks, stomach trouble, suger drop down to 48 or so...now lots protein drinks with low carbs,protein bars,cheese sticks beef sticks,ground turkey on low carb wraps,tuna on wraps,be sure add mayo,olive oil,for calories, also heavy whipping cream for excellent calories, in your coffee or in half cup milk,,finally gaining lil weight back and no syndrome stuff....boy I miss my patatos, patato chips,pasta,s...lol...
I’m 5 years out from surgery. I’m doing great 👍 except for occasional early dumping. Everyone’s journey is different, I believe because no one’s surgery/treatments are the same and your age plays a role.
For the past five years I’ve considered having a pyloromyotomy to relax my pylorus. I’ve hesitated because I’m afraid it might increase dumping syndrome,
and because dumping has improved over the past 3 years.
Some of my experiences: Carbs don’t seem to matter to me. I usually have some type of cake and milk a couple of hours before I go to bed almost every night.
One thing I’ve been trying to understand is if I drink 2 or more beers before dinner I can eat almost whatever volume of food I want. (Like normal people)
A couple years ago my BM’s were very loose, green and sticky. I stumbled upon a study on PEI (pancreatic enzyme inefficience) that states it’s a good idea for people who’ve had any type of stomach surgery to take pancreatic enzymes which is called ( pancreatic enzyme replacement therapy) I bought a bottle on Amazon from Pure encapsulations and within 24 hours my BM’s improved a lot.
I was on immunotherapy for 10 months, it destroyed my
Thyroid which gave me hypothyroidism. Your thyroid regulates everything in your body including digestion. The standard treatment is some form of levothyroxine. It doesn’t work for 20% of people. Took me 4 years to find out that I was one of them. I’m currently on Armour thyroid, which has helped with my digestion along with brain fog and fatigue.
I also think that over time your body adapts.
Hi, I am so glad to know so many patients have similar experiences.
I have done chemotherapy and radiation therapy February 2025, then surgery April 2025, almost 1 year ago.
Dumping syndrome has been a big every morning event till September 2025, then slowly not every morning things. But it has back again in last a few months. I don't know why it happened again,,, but understand still my new systems are under construction.
So many & so much patients for eating and drink some fluids.
Hi from Tasmania, I’m nearly 2 years post surgery (chemo and radiotherapy prior to that). Eating in the early stages of recovery was difficult and included feeling pretty nauseous if I over did it quantity wise - it would resolve within about 30 minutes. I assume this was dumping syndrome. While there’s little doubt some EC patients are more prone to dumping syndrome, getting your head around limited meal size and the need to eat frequently is an important part of managing the situation. At the (nearly) 2 year mark, I’m able to eat larger quantities and few foods cause issues for me. It seems everyone has their own story to tell, so don’t assume you’ll have ongoing problems.
Best wishes for your recovery. Geoff
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