Anyone have dumping syndrome post esophagectomy?

Posted by smanseau @smanseau, Jan 2, 2024

Anyone else have dumping syndrome post esophagectomy. How long did it last?

Any suggestions please.

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Profile picture for jayefaye @jayefaye

@dkoehne Thanks for taking the time to share all of that, really appreciate it. A lot of what you described sounds very similar to what I’ve been dealing with.

Interesting to hear about the Libre as well, it sounds like a really useful tool for staying ahead of things - I'll see if we have anything similar available in New Zealand.

Good to hear you’ve managed to stabilise your weight a bit too, that’s encouraging. All the best with it, sounds like you’ve found a way to manage it pretty well over time.

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@jayefaye I'm in NZ too, Christchurch.
It's great to hear from other kiwis who also have this struggle

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So im 1 year post esophageal surgery and have had both dumping syndrome and delayed dumping, deff different but watching what ya eat is deff the key,I was really never informed about delayed and fig it out last summer, while having what I thought was panic attacks stomach issues scattered feelings...to many carbs was causing pancreas to dump LG amounts of insulin into me and my suger would bomb out to 45 to 50 until I let things settle down,I have more info if anyone needs it,best of luck and prayers to all of us,its one crazy Ass life changing surgery, the chemo/ radiation put me in remission but chose the surgery also as there wasn't much time for research..

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Profile picture for jimbon @jimbon

So im 1 year post esophageal surgery and have had both dumping syndrome and delayed dumping, deff different but watching what ya eat is deff the key,I was really never informed about delayed and fig it out last summer, while having what I thought was panic attacks stomach issues scattered feelings...to many carbs was causing pancreas to dump LG amounts of insulin into me and my suger would bomb out to 45 to 50 until I let things settle down,I have more info if anyone needs it,best of luck and prayers to all of us,its one crazy Ass life changing surgery, the chemo/ radiation put me in remission but chose the surgery also as there wasn't much time for research..

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@jimbon . Yes I thought I was having panic attacks also as no one had explained it to me.

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Profile picture for suensteve @suensteve17

@jimbon . Yes I thought I was having panic attacks also as no one had explained it to me.

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@suensteve17 same here,I fig it out by myself, was scarry for while,and sucks cause we have to watch carbs so close and everything is carbs,they want you to gain weight ....but wait don't eat any sweets and carbs.im down to 145 from 172,65 year old male.....heavy whipping cream is Awsome along with olive oil as additives for good calorie count..

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Profile picture for jimbon @jimbon

@suensteve17 same here,I fig it out by myself, was scarry for while,and sucks cause we have to watch carbs so close and everything is carbs,they want you to gain weight ....but wait don't eat any sweets and carbs.im down to 145 from 172,65 year old male.....heavy whipping cream is Awsome along with olive oil as additives for good calorie count..

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@jimbon bread and sweets are out for me. I'm 64 and lost 20kg. I think I pretty much live on crackers and cheese

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Profile picture for suensteve @suensteve17

@jimbon bread and sweets are out for me. I'm 64 and lost 20kg. I think I pretty much live on crackers and cheese

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@suensteve17 yup do lot cheese, breakfast sausage,shivered ham turkey, roast beef,hamburgers, had a Reubin tonight, or I mean half,lol never leave a restaurant without a take home box,my son has chickens next door so I do eggs,very lil sweets,best of luck...

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Profile picture for jimbon @jimbon

@suensteve17 yup do lot cheese, breakfast sausage,shivered ham turkey, roast beef,hamburgers, had a Reubin tonight, or I mean half,lol never leave a restaurant without a take home box,my son has chickens next door so I do eggs,very lil sweets,best of luck...

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@jimbon thanks. You too

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Mine occurred now and then for several years. Usually after breakfast and depending on what I had for breakfast. Oatmeal is the safest for me but everyone is different. Six years out from my surgery, it rarely happens. Patience and trial and error is required. Best wishes.

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