Anyone else have diaphragmatic dystonia?

Anyone else dealing with diaphragmatic dystonia? I understand it is rare but I sure would like to find someone else to share this rarity. Twenty-six years ago I sustained a third concussion that was worse than others. Cervical dystonia from second concussion spread body wide and six months later I developed myoclonic jerks. It's been recently dx now as diaphragmatic dystonia which is quite painful involving my rib cage as well as whole body.