Anyone else have CHEK2 gene mutation? And have had multiple cancers?

Alot has changed with me since this original post! I had a new plastic surgeon look at my case with the overfilled implants I had before, that were causing horrific pain! And the Dr that did that surgery would NOT listen to me. I found a new one!
He took those out & put in smaller ones & I've been happy ever since!!💕 I'm still in physical therapy due to chronic pain from fibromyalgia & swelling from 2 breast surgeries.
But now, an ultrasound on my throat AFTER thyroid was removed last year due to cancerous nodule, the current ultrasound has found 2 masses in my throat! Radiologist said both look suspicious.
So my Endocrinologist is referring me to an ENT in southern Missouri. Due to having Medicaid, I'm limited on resources. I think it's unfair that a person like me that has had & continues to have multiple cancers, can't utilize KU cancer center, which isn't far from me, due to my insurance!
My Drs have tried many times to refer me to KU, & each time they reject me due to insurance. How is it that others are in charge of who you see, or what procedures you're allowed to have or not just due to insurance status. I find extremely unfair! Something NEEDS to be done about this!
I'm sure I'm not the only one going through this. I've had friends that have died due to hospitals or Dr's refusing to see them due to insurance reasons. Why!!?? It should NOT be this way! Everyone should be treated fairly & have EVERY opportunity like others are treated. It's people like me that fall through the cracks due to insurance or income status.
Is my life not as important as someone else? Is my family not important enough to want me around longer? Why should they have to suffer because of incompetent & bureaucratic system of unfairness.
I'm just really frustrated with this whole process so just bare with me.
I go today to talk to a Dr that may not be able to help me. Please pray for me through this process. I'm getting emotionally tired.

I'm truly sorry you're having to go through this.
You're in my prayers.

I'm truly sorry about your situation. You'll be in my thoughts & prayers. This journey is hard when you don't know a lot about the mutation. It makes it very difficult to find the right Dr's & to make the right decisions you need to make for yourself.
I just recently had my yearly ultrasound on my throat. After my thyroid cancer,they removed the glad. But now, I have 2 masses in my throat. Trying to find the right Dr to go to for follow up or 2nd opinion has been difficult.
Or that accepts my insurance. That's also been frustrating.
Anyway, good luck on your journey through this! Positive vibes being sent your way!

@judyrapp, that's a lot to handle. Are you in treatment for any of the cancers at the moment?

Yes, I have the CHEK2 mutation as well. I’ve had breast cancer twice, and I have some type of skin cancer removed every 3 months. Both occurrences of breast cancer were accompanied by squamous cell carcinoma or melanoma in the same month. I’ve also been diagnosed with polycythemia, and my latest diagnosis is IGA deficiency.

Did the injection drug do anything for you? Thoughts are with you.

Thank you!
Oh my, I'm sure sorry to hear of your long journey too.
I have PCOS too, which doesn't help any. My OBGYN says I need a hysterectomy, but my body has been through so many surgeries that she doesn't want to do anything right now. But it's definitely on the list of things to get done!
I'm praying that science hurries up & finds a cure for the gene mutation.

@colorado73
Sorry for all you’ve been through and the unnecessary added pain issue. I had years of excruciating pains from keloid scars post-mastectomy that shouldn’t have happened. Long story. I have CHEK2 and BRCA2 mutations. Breast cancer and neuroendocrine lung cancer. Lung issues are unrelated to the mutations at least based on today’s science. Tomorrow’s science may tell a different story.

BTW, I had cysts on my ovaries for decades due to polycystic ovary syndrome. Ovaries gone now. PCOS causes metabolic issues but the cysts were never cancerous. Hopefully your cyst is something more benign like that.

I know how you feel though. Once you have cancer, every new pain, cyst or anything makes you wonder.

Yes!!!
I'd LOVE to start a support group!
I could sure use some encouragement through this journey.
I just had breast reconstructive surgery AGAIN. Smaller implants due to the incompetent Surgeon I had to begin with. He OVERFILLED my 1st implants on purpose for HIS idea of what I should look like!
But thank God I found a new Dr that listened to me & has compassion & love for his patients! I'm so blessed! I've struggled with pain for 3 years due to the other implants. Nerve damage & pain. And I'm still in physical therapy, 3 years now. The woman I see is FANTASTIC & has to s of compassion for her patients too & has worked with me since day one! And continues to work with me.
Like having breast cancer isn't stressful enough, I had a surgeon that didn't care about what I wanted or how I felt. So suffering through that for 3 years was extremely hard! So stressful.
But I'm grateful for my new care team & I Thank God every day.
But yes, I'd love to hear from other out there that are struggling too with this gene mutation. Dr's are watching a cyst on my ovaries, a spot on my lung & my colon. Ugh ..

It feels like you with other folks like @colorado73 have a support group started right here. 💕
I have a few gene mutation coming from both sides of my family. Including cowden syndrome.
I have breast cancer starting in my 30’s, and skin cancer some years back. I always scheduled all my screenings right on time until I just got exhausted from it all last year. Still scheduling but maybe on my own terms.
Are you comfortable inviting the people with multiple cancers to connect?