Anyone else feel like people don't think Fibromyalgia is real?
This is my first foray into a support group so please bare with me. I was diagnosed with Fibromyalgia in August 2024 at Mayo Clinic. I had several weird symptoms that mimicked Sarcoidosis (which I was diagnosed by Mayo in 2010 but had gone into remission). However, many of the symptoms are the same and I was run through the works at Mayo and it was determined that it was Fibromyalgia. I was relieved to finally have a diagnosis to explain the chronic fatigue, lack of desire to engage in activities that used to bring happiness, fairly consistent pain, trouble sleeping and waking up in pain in the middle of the night, restless leg, anxiety, depression, fibro fog, etc. When I got home, my primary care and the chiropracter I have seen forever said, "that is what they diagnose you with when they can't figure out what is wrong. It's a catch all". This instantly discredited the diagnosis and made me doubt it because these are two practitioners I trust. After a year, I am still having symptoms and still trying several therapies (apps, breathing, mental health resources) and even added back a medication or two from the Sarcoidosis days.
I know there are people who suffer from this way more severely than I do. I am able to do most things I want and manage to push through the painful sleeping to be at work and function as best as I can, but I know I'm not lazy and this is not normal. For all of the things I can do I am very grateful. What I am struggling with is understanding the disease and what is just old age (I'm 54) or too many miles on the body vs what is Fibromyalgia impacting.
If anyone else had a similar experience of having your diagnosis dismissed by others, please share what you have done or are doing to get better physically and emotionally, and how you wrapped your mind around reality, regardless of what your reality has become.
Thanks to anyone who has time to respond and I appreciate the opportunity to learn from others.
Interested in more discussions like this? Go to the Fibromyalgia Support Group.
Connect

Yes, ignore ppl that dismiss fibro. Finally drs are believing it and there are studies for how to help. I get you. Me, ditto w that, RA, lupus, ddd, and stenosis. Many treatments and surgeries. Many. Have pain pump , and SCS. Having Nala trial next wk. will have 3 implants . Bionic then I guess lol. Fibromyalgia is REAL Sleep is awful. Hang in there. I have best hubby ever . Dealing w this 40 of our 49 yrs. Hope you have support