Anyone diagnosed with a primary neuroendocrine brain tumour

Posted by frendo @frendo, Mar 4 12:44pm

My wife (45 yo) was diagnosed with a primary neuroendocrine (or neuroblastoma - it has not been possible yet to identify which one) brain tumour. It was deemed as not operable because too infiltrated. She started the first cycle of chemotherapy with cisplatine and epotoside. Any experience with this form of tumour, effectiveness of treatments, etc.? Thank you

Interested in more discussions like this? Go to the Brain Tumor Support Group.

Hi @frendo, I added your discussion to the Neuroendocrine Tumors support group as well as the Brain Tumor support group. How is your wife doing so far on chemotherapy?

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