1. < Bladder Cancer

Anyone dealing with UTUC (Upper Tract Urothelial Carcinoma)?

Posted by slm189 @slm189, Oct 30, 2024

Diagnosed with non muscle invasive lowgrade UTUC. Have had three tumors ablated over the course of 1 1/2 years. Time to try Jelmyto?

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coppertemple | @coppertemple | Feb 23 10:23pm
In reply to @slm189 "I have not had Jelmyto procedure. My next URS is on April 16. Will update any..." + (show)
@slm189

I have not had Jelmyto procedure. My next URS is on April 16. Will update any recurrence/treatment plan. Thanks for asking.

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Thanks for the update. Wish you best of luck. I am kind of worried about this nephrostomy tube and stay minimum 6 weeks. Mentally getting ready for 6 weeks but NOT for one year treatment recommended.

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slm189 | @slm189 | 4 days ago
In reply to @slm189 "I have not had Jelmyto procedure. My next URS is on April 16. Will update any..." + (show)
@slm189

I have not had Jelmyto procedure. My next URS is on April 16. Will update any recurrence/treatment plan. Thanks for asking.

Jump to this post

Another small tumor (1cm and looks like recurrence) ablated in right ureter on 4/16/2025. Followup today 4/28/2025. This is 5th time tumor has been ablated. I tolerate this procedure really well with no complications. Dr still suggests ablating tumors vs Jelmyto treatment. He did state that maybe when I am 80 and can't take ablation any more, Jelmyto would be appropriate (I am 73). Have decided this could be my new norm every 6 months have a tumor ablated. So plan is CT urogram and cystoscopy in 3 months and go from there after reviewing urogram. Going into my 3rd year with this and research seems to indicate recurrences may slow down. Understand that I have no pain or bleeding. Wishing everyone with this diagnosis healing and peace.

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