Any testimonies where cancer didn't return?

Posted by Rom828 @jgallagher04921, Jun 4, 2023

I am new to this support group ( few weeks), but from what I have read there seems to be a trend with cancer coming back ( with all different diagnosis and treatment types). As I am still in the process of deciding on treatment, I'm starting to wonder " why bother going through all the side effects and feel ugly in the process if she-devil is just going to return".

Is there anyone out there that can speak to their win of cancer not coming back. What was ur diagnosis and treatment plan.. how long has it been since u were diagnosed?

Interested in more discussions like this? Go to the Breast Cancer Support Group.

@kathy88

Some Drs are stupid jerks.
They should all have training in being humans, learn how to tell the possibilities and then give positive encouragement.
i had good prognosis but none could say they thought i would be ok, protocol? my old pcp told me i was not in high risk group because my mom, sisters granny and kids didn’t have BC. i have 4 aunts 4 1st cousins with it and she acted like i was stupid because i thought i had risk with all these relatives getting it. I had a rash on my breast and she wouldn’t help me to get an appt for mamogram it was not her dept. when 9 mo later i finally got the test, she called me on the phone the next day to say i had cancer and do i want to go the next day to see the drs at the breast cancer meeting or did i have something else to do? You have cancer but maybe you could rather have lunch with your friends or go shopping. no common sence, she needs some Bachi.

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Wow, I hope you dumped that doctor from your care team.

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@luckbme

End of January I was diagnosed. Lumpectomy Feb 5, or around there. Started radiation March 31st for 15 treatments 3 weeks in a row. This team treating me has an oncologist, surgeon and radiologist. I do not have as much faith as I should in my oncologist. He's very narrow minded toward tamoxifen, and speaks very definitely. I need to tell him about this site. I just started every other day. Saturday was my first day of not taking the pill and for the first time in weeks I felt normal. I can even say that afternoon and evening I felt really good. So today, Sunday I took the pill again at 1pm. My alarm is set or I'd forget too easily. I will do every other day for this week and see how it goes. I'm 86 years old and 125 pounds. I don't plan to do a treatment that is worse than the disease.

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I have read studies that say that 10mg of Tamoxifen is as effective as 20mg, but with lot less side effects. But my oncologist won't even talk about it, nor will the pharmacist because she says that is the recommended protocol in the US and she could lose her license if she suggests otherwise. Its one size fits all with them. If I do decide to take Tamoxifen, I will cut in half myself. I value quality of life over quantity too.

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I had a lumpectomy in 1994 and that never came back. However, in 2020 I had another different another occurrence, not a reoccurrence. The second cancer was a totally different type than the first.
First time I took Tamoxifen, in 2020 had chemo. I don’t know what the other comments have been, but never give up. In those almost 30 years, I was able to see and do so much with my four grandchildren. Even with the last occurrence in 2020 I’ve been blessed with two great granddaughters. Everyone is different And I know I had the same thoughts as you. Best wishes.🙏🏻

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@irenegoody52

I have read studies that say that 10mg of Tamoxifen is as effective as 20mg, but with lot less side effects. But my oncologist won't even talk about it, nor will the pharmacist because she says that is the recommended protocol in the US and she could lose her license if she suggests otherwise. Its one size fits all with them. If I do decide to take Tamoxifen, I will cut in half myself. I value quality of life over quantity too.

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Just briefly, I took Tamoxifen for 5 full years in 1995. Kept me from Hr+ for almost 30 years. BUT, it did leave me with a lifetime of pain, fibromyalgia so they say. I had CONSTANT “hot flashes “ 24/7. If you don’t have that kind of side effect, I’d think you midget be ok, but there are a lot more treatments now than 30 years ago. Best wishes 🙏🏻

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@kathy88

Some Drs are stupid jerks.
They should all have training in being humans, learn how to tell the possibilities and then give positive encouragement.
i had good prognosis but none could say they thought i would be ok, protocol? my old pcp told me i was not in high risk group because my mom, sisters granny and kids didn’t have BC. i have 4 aunts 4 1st cousins with it and she acted like i was stupid because i thought i had risk with all these relatives getting it. I had a rash on my breast and she wouldn’t help me to get an appt for mamogram it was not her dept. when 9 mo later i finally got the test, she called me on the phone the next day to say i had cancer and do i want to go the next day to see the drs at the breast cancer meeting or did i have something else to do? You have cancer but maybe you could rather have lunch with your friends or go shopping. no common sence, she needs some Bachi.

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Consider getting a lawyer. And always get a second opinion.

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I just want to live with less anxiety not interested in retaliation. i know they want to help but they need to understand that we are fragile people who want to get better and when meds to curb anxiety give you stomach ache cause irritation it’s terrible. i pray for them and hope they can find a medication to stop the anxiety and stop the pain. Thank you .

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@kaykerz

Wow, I hope you dumped that doctor from your care team.

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she dumped me

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@kathy88

Some Drs are stupid jerks.
They should all have training in being humans, learn how to tell the possibilities and then give positive encouragement.
i had good prognosis but none could say they thought i would be ok, protocol? my old pcp told me i was not in high risk group because my mom, sisters granny and kids didn’t have BC. i have 4 aunts 4 1st cousins with it and she acted like i was stupid because i thought i had risk with all these relatives getting it. I had a rash on my breast and she wouldn’t help me to get an appt for mamogram it was not her dept. when 9 mo later i finally got the test, she called me on the phone the next day to say i had cancer and do i want to go the next day to see the drs at the breast cancer meeting or did i have something else to do? You have cancer but maybe you could rather have lunch with your friends or go shopping. no common sence, she needs some Bachi.

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I have an oncologist who is down right rude and uncaring. But I like the other three doctors on the team; the surgeon, radiologist and internal medicine doctor. I'd like to keep them. This is with the Iowa Clinic. There is only one other oncologist in my area with this clinic. I am 86 and had 15 radiation treatments with invasive ductal carcinoma. I did fine, but not so well with the tamoxifen. I need an oncologist with some empathy and who cares. Instead of suggesting another option he said, "I don't care what you take" in a very angry, dismissive voice. We were on the phone. He did add "as long as you know the side effects and that it could break your back." I ask if the Tamoxifen could break my back. He said yes because I have osteoporosis. So.... he still never answered my question about why he suggested Tamoxifen and not something like letrozole. I truly wanted to know the answer to that, which was the opening question in our phone conversation.

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