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Any struggles with follow up care?

Posted by wbmaxwell @wbmaxwell, Aug 1 11:12am

I'm curious if anyone else has had experiences with follow up care that make you feel you're not a priority?

I have had issues getting discussion or answers for follow up care from multiple departments. Even a few staff give me a knowing knod when I mention the struggle. I feel that new patients are given preferential care.

Interested in more discussions like this? Go to the Brain & Nervous System Support Group.

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kobe2026 | @kobe2026 | Aug 1 12:34pm

Only thing I can recommend is
1-Research, Research, Research
2-Read everything you can, and medical journals. Lancet happens to very good.
3-Join the society that applies to your condition
4-Go into to doctors with questions about your conditions and learn to interpret your blood results
hope this helps

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