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Any others diagnosed with MS after Covid?

Posted by acnickel1 @acnickel1, Jan 9, 2024

Hello,
I had my first and only Covid infection starting on Christmas 2022. I have never been so sick. I tested positive for 16 days and had a fever of over 103 for many days. I haven’t had a good health day since. After months of seeing doctor after doctor, I started to have blurred vision in and off. So, my PCP sent me for a brain MRI since it was rather sudden. That led to them finding multiple brain lesions. That lead to a neuro visit, 2 more MRIs for my cervical and thoracic spine, and a lumbar puncture. More lesions in my cervical spine were found plus indicators in my spinal fluid for MS. Has anyone else had this happen? Some infections like Epstein Barr Virus are known to trigger MS in some people, I just wonder if Covid may end up being one of those.

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janedoe130 | @janedoe130 | Dec 22, 2024

I am so sorry you are going through this! I have had a similar experience from my 1st bout with Covid in June 2022, post Covid shingles in August, then September 30, my right side from above my breast to my toes went numb--when I touched my leg it felt like I had a sheet covering my skin. I felt off balance often then, as well. I've had 5 brain, T and lumbar spine MRIs since and I do have lesions on my corpus callosum and spine that have not changed. Initially, during 4 days in the hospital, along with the first MRI I had a spinal tap where they found no Epstein Barre, Meningitis, Ensephalitis, Guillain-Barre syndrome, Multiple sclerosis was in question, but my neurologists are doubting this. I have one Oligoclonal band, and was treated in the hospital with IV Steroids. I have had numerous blood tests that found nothing significant but a low B12 score; they are not concerned with that and I've started taking supplements.
Recently there have been changes in my right eye vision causing a little blurryness and will be scheduled for an optic nerve MRI. My current symptoms are: Numbness between two toes, and the inside of my right lower leg. As well as an off balance feeling occasionally that I can "right" by touching a wall while walking or lifting my right arm as if I'm on a balance beam. Their current diagnosis: It was an opportunistic infection that attacked my spine while my immune system was compromised by Covid and post-covid shingles. BUT every time I go to see my Neurologist, she looks from a possibility of MS. I stopped receiving vaccinations after the first booster because of the unknown, and since I'm an event manager, I've had Covid 5 times. UGH! I had never considered this Long- Covid until I started reading these comments.

REPLY
1 reply
celia16 | @celia16 | Dec 22, 2024
In reply to @janedoe130 "I am so sorry you are going through this! I have had a similar experience from..." + (show)
@janedoe130

I am so sorry you are going through this! I have had a similar experience from my 1st bout with Covid in June 2022, post Covid shingles in August, then September 30, my right side from above my breast to my toes went numb--when I touched my leg it felt like I had a sheet covering my skin. I felt off balance often then, as well. I've had 5 brain, T and lumbar spine MRIs since and I do have lesions on my corpus callosum and spine that have not changed. Initially, during 4 days in the hospital, along with the first MRI I had a spinal tap where they found no Epstein Barre, Meningitis, Ensephalitis, Guillain-Barre syndrome, Multiple sclerosis was in question, but my neurologists are doubting this. I have one Oligoclonal band, and was treated in the hospital with IV Steroids. I have had numerous blood tests that found nothing significant but a low B12 score; they are not concerned with that and I've started taking supplements.
Recently there have been changes in my right eye vision causing a little blurryness and will be scheduled for an optic nerve MRI. My current symptoms are: Numbness between two toes, and the inside of my right lower leg. As well as an off balance feeling occasionally that I can "right" by touching a wall while walking or lifting my right arm as if I'm on a balance beam. Their current diagnosis: It was an opportunistic infection that attacked my spine while my immune system was compromised by Covid and post-covid shingles. BUT every time I go to see my Neurologist, she looks from a possibility of MS. I stopped receiving vaccinations after the first booster because of the unknown, and since I'm an event manager, I've had Covid 5 times. UGH! I had never considered this Long- Covid until I started reading these comments.

Jump to this post

Do you know why they aren’t concerned with a low B12? That’s sort of a biggie according to my neurologist and he ordered immediate daily sublingual doses. I had a marked improvement in some symptoms. I have post covid syndrome too, so…..I can’t be sure what is causing what. But, the B12 was a factor.

Good luck with everything.

REPLY
1 reply
janedoe130 | @janedoe130 | Dec 22, 2024
In reply to @celia16 "Do you know why they aren’t concerned with a low B12? That’s sort of a biggie..." + (show)
@celia16

Do you know why they aren’t concerned with a low B12? That’s sort of a biggie according to my neurologist and he ordered immediate daily sublingual doses. I had a marked improvement in some symptoms. I have post covid syndrome too, so…..I can’t be sure what is causing what. But, the B12 was a factor.

Good luck with everything.

Jump to this post

I had always assumed they didn't consider B12 as a factor because it wasn't low enough. I'm going to ask her.

Thank you!

REPLY
1 reply
celia16 | @celia16 | Dec 22, 2024
In reply to @janedoe130 "I had always assumed they didn't consider B12 as a factor because it wasn't low enough...." + (show)
@janedoe130

I had always assumed they didn't consider B12 as a factor because it wasn't low enough. I'm going to ask her.

Thank you!

Jump to this post

Mine was pretty low. And, apparently I don’t absorb the regular pills, so take sublingual.

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