Any one with Ménière Disease ?

Posted by mari42 @mari42, Dec 8, 2024

I have been diagnosed with Ménière disease 2 years ago and experienced this year drop attacks. Am interested in hearing what treatment has been prescribed and if any one has gone to nutritionists, osteopath, acupuncturist ?

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My surgeon is questioning if I also am developing Menieres Disease. You may have to search Menieres in the search box to find some helpful posts. There are also some facebook support groups as well. Good luck.

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Profile picture for TMM @tmragain

My surgeon is questioning if I also am developing Menieres Disease. You may have to search Menieres in the search box to find some helpful posts. There are also some facebook support groups as well. Good luck.

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Why is it your surgeon who is wondering if you are developing Ménière ? Usually it is an ENT specialist.
Up to now I have not seen any support group for Ménière anywhere.

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My surgeon is an otolaryngologist.

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Profile picture for mari42 @mari42

Why is it your surgeon who is wondering if you are developing Ménière ? Usually it is an ENT specialist.
Up to now I have not seen any support group for Ménière anywhere.

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There are several support groups on Facebook if you search and request to join.

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Profile picture for TMM @tmragain

There are several support groups on Facebook if you search and request to join.

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Thank you but I am not on Facebook and have organised a support group in person. To enlarge my understanding of Ménière’s disease and its various treatments, I would like to talk to people who live in different places and countries. I haven’t heard from anyone yet. I wonder why ?

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Profile picture for TMM @tmragain

My surgeon is an otolaryngologist.

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Thank you, that makes sense. Are you considering an operation of the inner
ear ?

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Profile picture for mari42 @mari42

Thank you, that makes sense. Are you considering an operation of the inner
ear ?

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Not at this time as I’ve already had 3 ear surgeries on the left ear this year alone. Things have calmed down over the last week so I’m keeping my fingers crossed! 🤞

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Profile picture for mari42 @mari42

Thank you but I am not on Facebook and have organised a support group in person. To enlarge my understanding of Ménière’s disease and its various treatments, I would like to talk to people who live in different places and countries. I haven’t heard from anyone yet. I wonder why ?

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Thank you. Dx 5 months ago. Otolaryngologist has me on Gabapentin and Duloxetine. I’m tired and sleepy all the time, and still dizzy. Not the spinning anymore, but still thick head and dizzy. I’m so frustrated I could die.

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I have developed Meiner's Disease since receiving the COVID injections and the COVID booster. I have lost 80-90 % of hearing in left ear. I have been getting steroid injections in my ear for about 8 weeks. The doctor is suggesting a different treatment using a drug named Gentamicin. Reading write-up on it scares me. It is a destructive drug and I will lose total hearing in that ear. It's intended to reduce episodes of verigo and stabilize my balance.
I am not in favor of going through with this treatment. Any comments??

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Sad! I hope that you receive support!
I never put anything into my body, even when the medical world says it will work- COVID INJECTIONS (in my experience) are a disaster and I’m so sorry that you have been affected.

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